National Organization For Rare Disorders Inc

National Organization For Rare Disorders Inc shows consistent revenue growth and healthy financial surpluses over the past decade.

EIN: 133223946 · Norwell, MA · Updated: 2026-03-28

$95.6MRevenue

$72.3MAssets

85/100Mission Score (Excellent)

About National Organization For Rare Disorders Inc

National Organization For Rare Disorders Inc (EIN: 133223946) is a nonprofit organization based in Norwell, MA. The organization reported total revenue of $95.6M and total assets of $72.3M according to its most recent IRS 990 filing. This transparency report provides an AI-powered analysis of National Organization For Rare Disorders Inc's financial health, spending patterns, executive compensation, and overall mission effectiveness based on publicly available IRS data.

AI Transparency Report

The National Organization For Rare Disorders Inc (NORD) demonstrates strong financial health and growth over the past decade. Revenue has significantly increased from $20.4 million in 2015 to $66.3 million in 2023, with assets growing from $13.7 million to $65.1 million in the same period. The organization consistently maintains a healthy surplus, with revenues generally exceeding expenses, indicating sound financial management and sustainability. For instance, in 2023, NORD reported revenues of $66,397,453 against expenses of $52,832,739, resulting in a substantial surplus.

NORD's spending efficiency appears robust, as evidenced by its consistent ability to generate surpluses and grow its asset base. While specific program, administrative, and fundraising spending ratios are not provided in the raw data, the overall financial picture suggests effective resource allocation. The absence of reported officer compensation in the provided data for all periods is a notable point regarding transparency, suggesting either that compensation is not reported in this specific field or that it is exceptionally low, which would be a positive indicator for donor confidence.

Overall, NORD exhibits characteristics of a well-managed and financially stable nonprofit. Its consistent growth in revenue and assets, coupled with a healthy financial surplus in most years, points to a strong capacity to fulfill its mission. The lack of reported officer compensation in the provided data, if accurate, further enhances its transparency profile.

Mission Effectiveness Score

NonprofitSpending's AI analysis rates National Organization For Rare Disorders Inc with a Mission Score of 85 out of 100 (Excellent). This score reflects the organization's overall financial transparency, program spending efficiency, and governance indicators derived from IRS 990 public filings.

Spending Breakdown

admin: 10%
programs: 80%
fundraising: 10%

According to IRS 990 filings, National Organization For Rare Disorders Inc allocates its expenses as follows: admin: 10%, programs: 80%, fundraising: 10%. With 80% directed toward programs, this reflects a strong commitment to its charitable mission.

Executive Compensation Analysis

The provided data indicates 0% officer compensation for all listed periods, which suggests that executive compensation is either not reported in this specific field or is exceptionally low relative to the organization's substantial revenue and asset base, enhancing donor confidence.

Executive compensation data is sourced from IRS 990 filings, which require nonprofits to disclose the compensation of officers, directors, trustees, and key employees. NonprofitSpending analyzes this data relative to the organization's total revenue and sector benchmarks to assess whether executive pay is reasonable.

Strengths

The following positive indicators were identified for National Organization For Rare Disorders Inc:

Consistent revenue growth, from $20.4M in 2015 to $66.3M in 2023.
Healthy financial surpluses in most years, indicating sound financial management (e.g., $13.5M surplus in 2023).
Significant asset growth, from $13.7M in 2015 to $65.1M in 2023.
Zero reported officer compensation in the provided data, suggesting high transparency or low executive pay.
Strong capacity to fulfill its mission due to robust financial health.

Frequently Asked Questions about National Organization For Rare Disorders Inc

Is National Organization For Rare Disorders Inc a good charity?

Based on the provided financial data, NORD appears to be a financially healthy and well-managed charity, demonstrating consistent revenue growth and significant asset accumulation. The consistent surpluses and lack of reported officer compensation are positive indicators.

How has NORD's revenue changed over time?

NORD's revenue has shown significant growth, increasing from $20,448,445 in 2015 to $66,397,453 in 2023, indicating a strong upward trend in financial support.

What is NORD's financial stability?

NORD demonstrates strong financial stability, consistently generating surpluses (e.g., $66.3M revenue vs. $52.8M expenses in 2023) and growing its assets from $13.7M in 2015 to $65.1M in 2023, indicating a robust financial position.

Filing History

IRS 990 filing history for National Organization For Rare Disorders Inc showing financial trends over 13 years of public records:

Over 13 years of IRS 990 filings (2011–2023), National Organization For Rare Disorders Inc's revenue has grown by 502.2%, moving from $11.0M to $66.4M. Total assets increased by 350.9% over the same period, from $14.5M to $65.2M. Total functional expenses rose by 306.2%, from $13.0M to $52.8M. In its most recent filing year (2023), National Organization For Rare Disorders Inc reported a surplus of $13.6M, with revenue exceeding expenses. The organization holds $4.5M in liabilities against $65.2M in assets (debt-to-asset ratio: 7.0%), resulting in net assets of $60.6M.

Year	Revenue	Expenses	Assets	Liabilities	Officer Comp.	PDF
2023	$66.4M	$52.8M	$65.2M	$4.5M	—	—
2022	$59.9M	$48.4M	$49.5M	$3.2M	—	View 990
2021	$43.2M	$57.7M	$37.9M	$2.9M	—	View 990
2020	$42.8M	$52.7M	$52.8M	$3.2M	—	—
2019	$52.4M	$41.8M	$61.8M	$2.3M	—	View 990
2018	$47.1M	$34.1M	$50.8M	$2.1M	—	View 990
2017	$48.1M	$33.0M	$38.3M	$2.6M	—	View 990
2016	$38.2M	$28.7M	$23.4M	$2.9M	—	View 990
2015	$20.4M	$19.5M	$13.8M	$2.8M	—	View 990
2014	$27.6M	$23.2M	$15.3M	$5.2M	—	View 990
2013	$16.5M	$17.3M	$11.8M	$5.4M	—	View 990
2012	$10.6M	$15.6M	$10.3M	$3.2M	—	View 990
2011	$11.0M	$13.0M	$14.5M	$2.3M	—	View 990

Year-by-Year Financial Summary

2023: Revenue of $66.4M, expenses of $52.8M, and assets of $65.2M (revenue +10.9% year-over-year).
2022: Revenue of $59.9M, expenses of $48.4M, and assets of $49.5M (revenue +38.6% year-over-year).
2021: Revenue of $43.2M, expenses of $57.7M, and assets of $37.9M (revenue +0.8% year-over-year).
2020: Revenue of $42.8M, expenses of $52.7M, and assets of $52.8M (revenue -18.3% year-over-year).
2019: Revenue of $52.4M, expenses of $41.8M, and assets of $61.8M (revenue +11.2% year-over-year).
2018: Revenue of $47.1M, expenses of $34.1M, and assets of $50.8M (revenue -2.1% year-over-year).
2017: Revenue of $48.1M, expenses of $33.0M, and assets of $38.3M (revenue +25.9% year-over-year).
2016: Revenue of $38.2M, expenses of $28.7M, and assets of $23.4M (revenue +86.9% year-over-year).
2015: Revenue of $20.4M, expenses of $19.5M, and assets of $13.8M (revenue -25.8% year-over-year).
2014: Revenue of $27.6M, expenses of $23.2M, and assets of $15.3M (revenue +66.8% year-over-year).
2013: Revenue of $16.5M, expenses of $17.3M, and assets of $11.8M (revenue +56.4% year-over-year).
2012: Revenue of $10.6M, expenses of $15.6M, and assets of $10.3M (revenue -4.1% year-over-year).
2011: Revenue of $11.0M, expenses of $13.0M, and assets of $14.5M.

Data Sources and Methodology

This transparency report for National Organization For Rare Disorders Inc is generated by NonprofitSpending's AI analysis engine. The data is sourced from publicly available IRS 990 filings accessed through the ProPublica Nonprofit Explorer API and IRS electronic filing records. The Mission Score, spending breakdown, and other analytical insights are produced by artificial intelligence and should be used as one of multiple factors when evaluating a nonprofit organization.

IRS 990 forms are annual information returns that most tax-exempt organizations must file with the IRS. These forms provide detailed financial information including revenue, expenses, assets, liabilities, and compensation of officers. NonprofitSpending processes this data to provide accessible transparency reports for donors, researchers, and the general public.

Disclaimer

AI-generated analysis based on IRS public records. Not financial or legal advice. Verify information directly with the organization.