Huntingtons Disease Society Of America Inc
Huntingtons Disease Society Of America Inc shows consistent revenue and strong asset growth over the past decade.
EIN: 133349872 · New York, NY · Updated: 2026-03-28
| Metric | Value |
|---|---|
| Total Revenue | $11.3M |
| Total Expenses | $9.4M |
| Program Spending | 80% |
| CEO/Top Officer Pay | $10 |
| Net Assets | $15.2M |
| Transparency Score | 85/100 |
Is Huntingtons Disease Society Of America Inc Legit?
Some Concerns
Assessment based on IRS 990 filings, spending patterns, and AI analysis. Not a guarantee of legitimacy. Full charity check →
Huntingtons Disease Society Of America Inc directs 80% of its spending to programs. This exceeds the industry benchmark of 65%, indicating strong mission focus.
About Huntingtons Disease Society Of America Inc
Huntingtons Disease Society Of America Inc (EIN: 133349872) is a nonprofit organization based in New York, NY. The organization reported total revenue of $11.3M and total assets of $17.3M according to its most recent IRS 990 filing. This transparency report provides an AI-powered analysis of Huntingtons Disease Society Of America Inc's financial health, spending patterns, executive compensation, and overall mission effectiveness based on publicly available IRS data.
Organization Overview
Huntingtons Disease Society Of America Inc is a large nonprofit that has been operating for 38 years, with 13 years of IRS 990 filings on record (2011–2022). Revenue has grown at a compound annual rate of 5.3%.
Key Financial Metrics (2022)
From the most recent IRS 990 filing on record:
| Total Revenue | $10.7M |
| Total Expenses | $9.4M |
| Surplus / Deficit | +$1.3M |
| Total Assets | $17.4M |
| Total Liabilities | $2.2M |
| Net Assets | $15.2M |
| Operating Margin | 12.1% |
| Debt-to-Asset Ratio | 12.8% |
| Months of Reserves | 22.2 months |
Financial Health Grade: A
In 2022, Huntingtons Disease Society Of America Inc reported a surplus of $1.3M with revenue exceeding expenses, holds 22.2 months of operating reserves (strong position), has a debt-to-asset ratio of 12.8% (very low leverage).
Financial Trends
Over 13 years of filings (2011–2022), Huntingtons Disease Society Of America Inc's revenue has grown at a compound annual growth rate (CAGR) of 5.3%.
| Year | Revenue Change | Expense Change | Asset Change |
|---|---|---|---|
| 2022 | -12.2% | +18.5% | +10.3% |
| 2021 | +42.1% | -3.5% | +29.5% |
| 2020 | -22.1% | -10.5% | +11.1% |
| 2019 | +8.4% | +5.3% | +16.2% |
| 2018 | -1.0% | +1.2% | +16.3% |
IRS Tax-Exempt Classification
| IRS Classification Codes | 1000 |
| IRS Ruling Date | 1988 |
Classification data from ProPublica Nonprofit Explorer. Additional BMF data may be available after enrichment.
AI Transparency Report
Mission Effectiveness Score
NonprofitSpending's AI analysis rates Huntingtons Disease Society Of America Inc with a Mission Score of 85 out of 100 (Excellent). This score reflects the organization's overall financial transparency, program spending efficiency, and governance indicators derived from IRS 990 public filings.
Spending Breakdown
- admin: 12%
- programs: 80%
- fundraising: 8%
According to IRS 990 filings, Huntingtons Disease Society Of America Inc allocates its expenses as follows: admin: 12%, programs: 80%, fundraising: 8%. With 80% directed toward programs, this reflects a strong commitment to its charitable mission.
Key Financial Metrics (2022)
From the most recent IRS 990 filing on record:
- The organization reported a surplus of $1.3M, with revenue exceeding expenses.
- Debt-to-asset ratio: 12.8%.
Executive Compensation Analysis
The provided data consistently reports 0% for officer compensation across all years, which is unusual for an organization of this size with over $10 million in annual revenue. This suggests that executive compensation may be categorized differently or not fully captured in the 'Officer Comp' metric provided, requiring a deeper dive into the full 990 forms for accurate assessment.
Executive compensation data is sourced from IRS 990 filings, which require nonprofits to disclose the compensation of officers, directors, trustees, and key employees. NonprofitSpending analyzes this data relative to the organization's total revenue and sector benchmarks to assess whether executive pay is reasonable.
Red Flags
The following concerns were identified during AI analysis of Huntingtons Disease Society Of America Inc's IRS 990 filings:
- Unclear executive compensation reporting (0% officer comp in summary data)
Strengths
The following positive indicators were identified for Huntingtons Disease Society Of America Inc:
- Consistent revenue generation (e.g., $10.7M in 2022, $12.2M in 2021)
- Significant asset growth (from $3.5M in 2013 to $17.4M in 2022)
- Expenses consistently lower than revenue, leading to financial stability
- Long history of IRS 990 filings (13 filings)
- Strong program spending ratio (estimated 80%)
Frequently Asked Questions about Huntingtons Disease Society Of America Inc
Is Huntingtons Disease Society Of America Inc a legitimate charity?
Huntingtons Disease Society Of America Inc (EIN: 133349872) is a registered tax-exempt nonprofit based in New York. Our AI analysis gives it a Mission Score of 85/100. It has 13 years of IRS 990 filings on record. Total revenue: $11.3M. 1 red flag identified. 5 strengths noted. Financial health grade: A.
How does Huntingtons Disease Society Of America Inc spend its money?
Huntingtons Disease Society Of America Inc directs 80% of its spending to programs and services. Fundraising costs 8%. This exceeds the 65% industry benchmark.
Are donations to Huntingtons Disease Society Of America Inc tax-deductible?
Huntingtons Disease Society Of America Inc is registered as a tax-exempt nonprofit (EIN: 133349872). Donations to most 501(c)(3) organizations are tax-deductible. Consult a tax professional for your specific situation.
How much does the Huntingtons Disease Society Of America Inc CEO make?
Huntingtons Disease Society Of America Inc's highest-compensated officer earns $10 annually. The organization reported $11.3M in total revenue. Executive compensation data is disclosed in IRS 990 filings.
What percentage of Huntingtons Disease Society Of America Inc's spending goes to programs?
Huntingtons Disease Society Of America Inc directs 80% to programs, 8% to fundraising. This exceeds the 65% industry benchmark for efficient nonprofits.
Where is Huntingtons Disease Society Of America Inc located?
Huntingtons Disease Society Of America Inc is headquartered in New York, New York and files with the IRS under EIN 133349872.
How many years of IRS 990 filings does Huntingtons Disease Society Of America Inc have?
Huntingtons Disease Society Of America Inc has 13 years of IRS 990 filings on record at NonprofitSpending. This extensive filing history provides a strong basis for evaluating long-term financial trends. The most recent filing shows $11.3M in total revenue.
Is Huntingtons Disease Society Of America Inc a good charity?
Based on its consistent revenue, strong asset growth from $3.5M in 2013 to $17.4M in 2022, and a healthy spending ratio (estimated 80% on programs), HDSA appears to be a financially sound and effective charity. Further investigation into detailed program outcomes and executive compensation specifics would provide a more complete picture.
How has HDSA's financial health changed over the last decade?
HDSA's financial health has significantly improved over the last decade. Revenue has grown from $7.1M in 2013 to $10.7M in 2022, and assets have increased nearly fivefold from $3.5M to $17.4M in the same period, indicating strong financial management and sustainability.
What is the trend in HDSA's expenses relative to its revenue?
HDSA consistently manages its expenses below its revenue. For example, in 2022, expenses were $9.4M against $10.7M in revenue, and in 2021, $7.9M against $12.2M. This consistent surplus contributes to its growing asset base.
Why is officer compensation reported as 0%?
The consistent reporting of 0% for 'Officer Comp' in the provided summary data is unusual for an organization of this size. This could mean that executive salaries are not categorized under this specific line item in the summarized data, or they are included within other expense categories. A review of the full IRS 990 forms would be necessary to understand how executive compensation is reported.
Filing History
IRS 990 filing history for Huntingtons Disease Society Of America Inc showing financial trends over 13 years of public records:
Over 13 years of IRS 990 filings (2011–2022), Huntingtons Disease Society Of America Inc's revenue has grown by 75.9%, moving from $6.1M to $10.7M. Total assets increased by 548.5% over the same period, from $2.7M to $17.4M. Total functional expenses rose by 57.5%, from $6.0M to $9.4M. In its most recent filing year (2022), Huntingtons Disease Society Of America Inc reported a surplus of $1.3M, with revenue exceeding expenses. The organization holds $2.2M in liabilities against $17.4M in assets (debt-to-asset ratio: 12.8%), resulting in net assets of $15.2M.
| Year | Revenue | Expenses | Assets | Liabilities | Officer Comp. % | |
|---|---|---|---|---|---|---|
| 2022 | $10.7M | $9.4M | $17.4M | $2.2M | — | View 990 |
| 2021 | $12.2M | $7.9M | $15.8M | $1.9M | — | View 990 |
| 2020 | $8.6M | $8.2M | $12.2M | $2.5M | — | — |
| 2019 | $11.0M | $9.2M | $11.0M | $1.6M | — | View 990 |
| 2018 | $10.2M | $8.7M | $9.4M | $1.9M | — | View 990 |
| 2017 | $10.3M | $8.6M | $8.1M | $2.0M | — | View 990 |
| 2016 | $8.6M | $8.0M | $6.1M | $1.5M | — | View 990 |
| 2015 | $8.5M | $7.0M | $5.2M | $1.0M | — | View 990 |
| 2014 | $7.7M | $6.6M | $4.2M | $1.6M | — | View 990 |
| 2013 | $7.2M | $6.8M | $3.5M | $2.0M | — | View 990 |
| 2012 | $6.4M | $5.7M | $2.7M | $1.5M | — | View 990 |
| 2011 | $1.6M | $2.3M | $2.7M | $2.2M | — | View 990 |
| 2011 | $6.1M | $6.0M | $2.7M | $1.6M | — | View 990 |
Year-by-Year Financial Summary
- 2022: Revenue of $10.7M, expenses of $9.4M, and assets of $17.4M (revenue -12.2% year-over-year).
- 2021: Revenue of $12.2M, expenses of $7.9M, and assets of $15.8M (revenue +42.1% year-over-year).
- 2020: Revenue of $8.6M, expenses of $8.2M, and assets of $12.2M (revenue -22.1% year-over-year).
- 2019: Revenue of $11.0M, expenses of $9.2M, and assets of $11.0M (revenue +8.4% year-over-year).
- 2018: Revenue of $10.2M, expenses of $8.7M, and assets of $9.4M (revenue -1.0% year-over-year).
- 2017: Revenue of $10.3M, expenses of $8.6M, and assets of $8.1M (revenue +19.8% year-over-year).
- 2016: Revenue of $8.6M, expenses of $8.0M, and assets of $6.1M (revenue +1.0% year-over-year).
- 2015: Revenue of $8.5M, expenses of $7.0M, and assets of $5.2M (revenue +9.8% year-over-year).
- 2014: Revenue of $7.7M, expenses of $6.6M, and assets of $4.2M (revenue +7.8% year-over-year).
- 2013: Revenue of $7.2M, expenses of $6.8M, and assets of $3.5M (revenue +11.9% year-over-year).
- 2012: Revenue of $6.4M, expenses of $5.7M, and assets of $2.7M (revenue +291.4% year-over-year).
- 2011: Revenue of $1.6M, expenses of $2.3M, and assets of $2.7M (revenue -73.1% year-over-year).
- 2011: Revenue of $6.1M, expenses of $6.0M, and assets of $2.7M.
View Individual Filing Years
Explore detailed financial data from each IRS 990 filing year for Huntingtons Disease Society Of America Inc:
Data Sources and Methodology
This transparency report for Huntingtons Disease Society Of America Inc is generated by NonprofitSpending's AI analysis engine. The data is sourced from publicly available IRS 990 filings accessed through the ProPublica Nonprofit Explorer API and IRS electronic filing records. The Mission Score, spending breakdown, and other analytical insights are produced by artificial intelligence and should be used as one of multiple factors when evaluating a nonprofit organization.
IRS 990 forms are annual information returns that most tax-exempt organizations must file with the IRS. These forms provide detailed financial information including revenue, expenses, assets, liabilities, and compensation of officers. NonprofitSpending processes this data to provide accessible transparency reports for donors, researchers, and the general public.
Disclaimer
AI-generated analysis based on IRS public records. Not financial or legal advice. Verify information directly with the organization.