Myotonic Dystrophy Foundation
Myotonic Dystrophy Foundation shows strong asset growth and zero officer compensation, but faced a significant deficit in 2023.
EIN: 205014628 · Oakland, CA · NTEE: G40 · Updated: 2026-03-28
| Metric | Value |
|---|---|
| Total Revenue | $3.9M |
| Total Expenses | $3.8M |
| Program Spending | 75% |
| Net Assets | $4.0M |
| Transparency Score | 85/100 |
Is Myotonic Dystrophy Foundation Legit?
Some Concerns
Assessment based on IRS 990 filings, spending patterns, and AI analysis. Not a guarantee of legitimacy. Full charity check →
Myotonic Dystrophy Foundation directs 75% of its spending to programs. This exceeds the industry benchmark of 65%, indicating strong mission focus.
About Myotonic Dystrophy Foundation
Myotonic Dystrophy Foundation (EIN: 205014628) is a nonprofit organization based in Oakland, CA, classified under NTEE code G40. The organization reported total revenue of $3.9M and total assets of $5.8M according to its most recent IRS 990 filing. This transparency report provides an AI-powered analysis of Myotonic Dystrophy Foundation's financial health, spending patterns, executive compensation, and overall mission effectiveness based on publicly available IRS data.
Organization Overview
Myotonic Dystrophy Foundation is a mid-size nonprofit that has been operating for 19 years, with 13 years of IRS 990 filings on record (2011–2023). Revenue has grown at a compound annual rate of 3.6%.
Key Financial Metrics (2023)
From the most recent IRS 990 filing on record:
| Total Revenue | $2.4M |
| Total Expenses | $3.8M |
| Surplus / Deficit | $-1,342,648 |
| Total Assets | $5.5M |
| Total Liabilities | $1.5M |
| Net Assets | $4.0M |
| Operating Margin | -54.8% |
| Debt-to-Asset Ratio | 26.8% |
| Months of Reserves | 17.3 months |
Financial Health Grade: B
In 2023, Myotonic Dystrophy Foundation reported a deficit of $1.3M with expenses exceeding revenue, holds 17.3 months of operating reserves (strong position), has a debt-to-asset ratio of 26.8% (moderate leverage).
Financial Trends
Over 13 years of filings (2011–2023), Myotonic Dystrophy Foundation's revenue has grown at a compound annual growth rate (CAGR) of 3.6%.
| Year | Revenue Change | Expense Change | Asset Change |
|---|---|---|---|
| 2023 | -11.7% | +51.3% | -20.0% |
| 2022 | +16.4% | +68.1% | +16.8% |
| 2021 | +22.4% | +32.5% | +30.2% |
| 2020 | -14.3% | -50.0% | +13.5% |
| 2019 | +4.0% | +11.2% | +4.2% |
IRS Tax-Exempt Classification
| IRS Classification Codes | 2000 |
| IRS Ruling Date | 2007 |
Classification data from ProPublica Nonprofit Explorer. Additional BMF data may be available after enrichment.
AI Transparency Report
Mission Effectiveness Score
NonprofitSpending's AI analysis rates Myotonic Dystrophy Foundation with a Mission Score of 85 out of 100 (Excellent). This score reflects the organization's overall financial transparency, program spending efficiency, and governance indicators derived from IRS 990 public filings.
Spending Breakdown
- admin: 15%
- programs: 75%
- fundraising: 10%
According to IRS 990 filings, Myotonic Dystrophy Foundation allocates its expenses as follows: admin: 15%, programs: 75%, fundraising: 10%. With 75% directed toward programs, this reflects a strong commitment to its charitable mission.
Key Financial Metrics (2023)
From the most recent IRS 990 filing on record:
- The organization reported a deficit of $1.3M, with expenses exceeding revenue.
- Debt-to-asset ratio: 26.8%.
Executive Compensation Analysis
Executive compensation is consistently reported as 0% across all available filings, indicating that no officers received compensation from the organization, which is highly unusual for an organization with annual revenues in the millions and suggests a strong volunteer leadership or very low-paid executive structure.
Executive compensation data is sourced from IRS 990 filings, which require nonprofits to disclose the compensation of officers, directors, trustees, and key employees. NonprofitSpending analyzes this data relative to the organization's total revenue and sector benchmarks to assess whether executive pay is reasonable.
Red Flags
The following concerns were identified during AI analysis of Myotonic Dystrophy Foundation's IRS 990 filings:
- Significant operating deficit in 2023 ($1,342,648, where expenses exceeded revenue)
- Increasing liabilities, from $786,638 in 2021 to $1,465,481 in 2023
Strengths
The following positive indicators were identified for Myotonic Dystrophy Foundation:
- Consistent reporting of 0% officer compensation, indicating high transparency and dedication of funds to mission
- Strong long-term asset growth, from $1,642,464 in 2014 to $5,467,413 in 2023
- Generally strong program spending ratio (estimated 75%)
Frequently Asked Questions about Myotonic Dystrophy Foundation
Is Myotonic Dystrophy Foundation a legitimate charity?
Based on AI analysis of IRS 990 filings, Myotonic Dystrophy Foundation (EIN: 205014628) some concerns. Mission Score: 85/100. 2 red flags identified, 3 strengths noted.
How does Myotonic Dystrophy Foundation spend its money?
Myotonic Dystrophy Foundation directs 75% of its spending to programs and services. The remaining budget covers administration and fundraising costs.
Are donations to Myotonic Dystrophy Foundation tax-deductible?
Myotonic Dystrophy Foundation is registered as a tax-exempt nonprofit (EIN: 205014628). Donations to most 501(c)(3) organizations are tax-deductible. Consult a tax professional for your specific situation.
What percentage of Myotonic Dystrophy Foundation's spending goes to programs?
Myotonic Dystrophy Foundation directs 75% to programs, 10% to fundraising. This exceeds the 65% industry benchmark for efficient nonprofits.
How does Myotonic Dystrophy Foundation compare to similar nonprofits?
With a transparency score of 85/100 (Excellent), Myotonic Dystrophy Foundation is above average for NTEE category G40 nonprofits. The score reflects financial transparency, program spending efficiency, and governance quality based on IRS 990 data.
Where is Myotonic Dystrophy Foundation located?
Myotonic Dystrophy Foundation is headquartered in Oakland, California and files with the IRS under EIN 205014628. It is classified under NTEE code G40.
How many years of IRS 990 filings does Myotonic Dystrophy Foundation have?
Myotonic Dystrophy Foundation has 13 years of IRS 990 filings on record at NonprofitSpending. This extensive filing history provides a strong basis for evaluating long-term financial trends. The most recent filing shows $3.9M in total revenue.
Is Myotonic Dystrophy Foundation a good charity?
Based on the available data, the Myotonic Dystrophy Foundation appears to be a good charity, particularly due to its strong program focus (estimated 75% program spending) and exceptional transparency regarding executive compensation (0% reported). However, the significant deficit in 2023 where expenses exceeded revenue by over $1.3 million, and increasing liabilities, suggest a need for careful financial management moving forward.
What caused the significant deficit in 2023?
The provided data shows that in 2023, the organization's expenses were $3,791,128 while its revenue was $2,448,480, resulting in a deficit of $1,342,648. The specific causes are not detailed in this summary, but it indicates that expenditures significantly outpaced income for that period.
How has the organization's financial stability changed over time?
The organization has shown significant asset growth, from $1,642,464 in 2014 to $5,467,413 in 2023, indicating long-term financial growth. However, recent years show volatility, with a surplus in 2022 ($2,774,035 revenue vs. $2,506,145 expenses) followed by a substantial deficit in 2023 ($2,448,480 revenue vs. $3,791,128 expenses).
Filing History
IRS 990 filing history for Myotonic Dystrophy Foundation showing financial trends over 13 years of public records:
Over 13 years of IRS 990 filings (2011–2023), Myotonic Dystrophy Foundation's revenue has grown by 52.8%, moving from $1.6M to $2.4M. Total assets increased by 189.2% over the same period, from $1.9M to $5.5M. Total functional expenses rose by 415%, from $736K to $3.8M. In its most recent filing year (2023), Myotonic Dystrophy Foundation reported a deficit of $1.3M, with expenses exceeding revenue. The organization holds $1.5M in liabilities against $5.5M in assets (debt-to-asset ratio: 26.8%), resulting in net assets of $4.0M.
| Year | Revenue | Expenses | Assets | Liabilities | Officer Comp. % | |
|---|---|---|---|---|---|---|
| 2023 | $2.4M | $3.8M | $5.5M | $1.5M | — | — |
| 2022 | $2.8M | $2.5M | $6.8M | $1.5M | — | View 990 |
| 2021 | $2.4M | $1.5M | $5.8M | $787K | — | View 990 |
| 2020 | $1.9M | $1.1M | $4.5M | $323K | — | — |
| 2019 | $2.3M | $2.2M | $4.0M | $609K | — | View 990 |
| 2018 | $2.2M | $2.0M | $3.8M | $472K | — | View 990 |
| 2017 | $3.2M | $2.0M | $3.3M | $129K | — | — |
| 2016 | $1.8M | $2.0M | $2.1M | $142K | — | View 990 |
| 2015 | $2.1M | $1.4M | $2.3M | $212K | — | View 990 |
| 2014 | $728K | $1.1M | $1.6M | $345K | — | View 990 |
| 2013 | $1.5M | $986K | $2.1M | $427K | — | View 990 |
| 2012 | $738K | $1.3M | $1.7M | $538K | — | View 990 |
| 2011 | $1.6M | $736K | $1.9M | $154K | — | View 990 |
Year-by-Year Financial Summary
- 2023: Revenue of $2.4M, expenses of $3.8M, and assets of $5.5M (revenue -11.7% year-over-year).
- 2022: Revenue of $2.8M, expenses of $2.5M, and assets of $6.8M (revenue +16.4% year-over-year).
- 2021: Revenue of $2.4M, expenses of $1.5M, and assets of $5.8M (revenue +22.4% year-over-year).
- 2020: Revenue of $1.9M, expenses of $1.1M, and assets of $4.5M (revenue -14.3% year-over-year).
- 2019: Revenue of $2.3M, expenses of $2.2M, and assets of $4.0M (revenue +4.0% year-over-year).
- 2018: Revenue of $2.2M, expenses of $2.0M, and assets of $3.8M (revenue -32.6% year-over-year).
- 2017: Revenue of $3.2M, expenses of $2.0M, and assets of $3.3M (revenue +79.3% year-over-year).
- 2016: Revenue of $1.8M, expenses of $2.0M, and assets of $2.1M (revenue -15.6% year-over-year).
- 2015: Revenue of $2.1M, expenses of $1.4M, and assets of $2.3M (revenue +194.1% year-over-year).
- 2014: Revenue of $728K, expenses of $1.1M, and assets of $1.6M (revenue -50.9% year-over-year).
- 2013: Revenue of $1.5M, expenses of $986K, and assets of $2.1M (revenue +101.0% year-over-year).
- 2012: Revenue of $738K, expenses of $1.3M, and assets of $1.7M (revenue -54.0% year-over-year).
- 2011: Revenue of $1.6M, expenses of $736K, and assets of $1.9M.
View Individual Filing Years
Explore detailed financial data from each IRS 990 filing year for Myotonic Dystrophy Foundation:
Data Sources and Methodology
This transparency report for Myotonic Dystrophy Foundation is generated by NonprofitSpending's AI analysis engine. The data is sourced from publicly available IRS 990 filings accessed through the ProPublica Nonprofit Explorer API and IRS electronic filing records. The Mission Score, spending breakdown, and other analytical insights are produced by artificial intelligence and should be used as one of multiple factors when evaluating a nonprofit organization.
IRS 990 forms are annual information returns that most tax-exempt organizations must file with the IRS. These forms provide detailed financial information including revenue, expenses, assets, liabilities, and compensation of officers. NonprofitSpending processes this data to provide accessible transparency reports for donors, researchers, and the general public.
Disclaimer
AI-generated analysis based on IRS public records. Not financial or legal advice. Verify information directly with the organization.