National Down Syndrome Society
National Down Syndrome Society shows stable assets but recent deficits and fluctuating revenue.
EIN: 132992567 · New York, NY · Updated: 2026-03-28
| Metric | Value |
|---|---|
| Total Revenue | $6.2M |
| Total Expenses | $4.2M |
| Program Spending | 75% |
| CEO/Top Officer Pay | $12 |
| Net Assets | $12.4M |
| Transparency Score | 75/100 |
Is National Down Syndrome Society Legit?
Some Concerns
Assessment based on IRS 990 filings, spending patterns, and AI analysis. Not a guarantee of legitimacy. Full charity check →
National Down Syndrome Society directs 75% of its spending to programs. This exceeds the industry benchmark of 65%, indicating strong mission focus.
About National Down Syndrome Society
National Down Syndrome Society (EIN: 132992567) is a nonprofit organization based in New York, NY. The organization reported total revenue of $6.2M and total assets of $13.0M according to its most recent IRS 990 filing. This transparency report provides an AI-powered analysis of National Down Syndrome Society's financial health, spending patterns, executive compensation, and overall mission effectiveness based on publicly available IRS data.
Organization Overview
National Down Syndrome Society is a mid-size nonprofit that has been operating for 47 years, with 13 years of IRS 990 filings on record (2012–2023). Revenue has grown at a compound annual rate of 4.2%.
Key Financial Metrics (2023)
From the most recent IRS 990 filing on record:
| Total Revenue | $3.4M |
| Total Expenses | $4.2M |
| Surplus / Deficit | $-806,558 |
| Total Assets | $13.5M |
| Total Liabilities | $1.1M |
| Net Assets | $12.4M |
| Operating Margin | -24.0% |
| Debt-to-Asset Ratio | 8.0% |
| Months of Reserves | 38.9 months |
Financial Health Grade: B
In 2023, National Down Syndrome Society reported a deficit of $807K with expenses exceeding revenue, holds 38.9 months of operating reserves (strong position), has a debt-to-asset ratio of 8.0% (very low leverage).
Financial Trends
Over 13 years of filings (2012–2023), National Down Syndrome Society's revenue has grown at a compound annual growth rate (CAGR) of 4.2%.
| Year | Revenue Change | Expense Change | Asset Change |
|---|---|---|---|
| 2023 | -8.2% | +22.7% | +3.3% |
| 2022 | +5.9% | +27.8% | -14.3% |
| 2021 | +10.3% | -4.1% | +23.1% |
| 2020 | +121.8% | +201.6% | +7.4% |
| 2019 | -49.5% | -72.7% | -3.1% |
IRS Tax-Exempt Classification
| IRS Classification Codes | 1000 |
| IRS Ruling Date | 1979 |
Classification data from ProPublica Nonprofit Explorer. Additional BMF data may be available after enrichment.
AI Transparency Report
Mission Effectiveness Score
NonprofitSpending's AI analysis rates National Down Syndrome Society with a Mission Score of 75 out of 100 (Good). This score reflects the organization's overall financial transparency, program spending efficiency, and governance indicators derived from IRS 990 public filings.
Spending Breakdown
- admin: 15%
- programs: 75%
- fundraising: 10%
According to IRS 990 filings, National Down Syndrome Society allocates its expenses as follows: admin: 15%, programs: 75%, fundraising: 10%. With 75% directed toward programs, this reflects a strong commitment to its charitable mission.
Key Financial Metrics (2023)
From the most recent IRS 990 filing on record:
- The organization reported a deficit of $807K, with expenses exceeding revenue.
- Debt-to-asset ratio: 8.0%.
Executive Compensation Analysis
The reported 0% officer compensation across all provided filings suggests that executive salaries are either very low, not categorized under 'officer compensation' in this summary data, or are covered by other means, which is unusual for an organization of this size with assets over $12 million.
Executive compensation data is sourced from IRS 990 filings, which require nonprofits to disclose the compensation of officers, directors, trustees, and key employees. NonprofitSpending analyzes this data relative to the organization's total revenue and sector benchmarks to assess whether executive pay is reasonable.
Red Flags
The following concerns were identified during AI analysis of National Down Syndrome Society's IRS 990 filings:
- Recent trend of expenses exceeding revenue (e.g., 202306: Expenses $4.16M vs. Revenue $3.35M)
- Significant year-over-year revenue fluctuations (e.g., $9.9M in 201703 to $3.3M in 202306)
- Unusually low or 0% reported officer compensation for an organization of this size, which may obscure actual executive pay.
Strengths
The following positive indicators were identified for National Down Syndrome Society:
- Strong asset base ($12.9M latest assets, consistently over $11M in recent years)
- Low liabilities relative to assets, indicating good solvency (e.g., 202306: Liabilities $1.08M vs. Assets $13.5M)
- Consistent filing history, indicating transparency in reporting to the IRS.
Frequently Asked Questions about National Down Syndrome Society
Is National Down Syndrome Society a legitimate charity?
National Down Syndrome Society (EIN: 132992567) is a registered tax-exempt nonprofit based in New York. Our AI analysis gives it a Mission Score of 75/100. It has 13 years of IRS 990 filings on record. Total revenue: $6.2M. 3 red flags identified. 3 strengths noted. Financial health grade: B.
How does National Down Syndrome Society spend its money?
National Down Syndrome Society directs 75% of its spending to programs and services. Fundraising costs 10%. This exceeds the 65% industry benchmark.
Are donations to National Down Syndrome Society tax-deductible?
National Down Syndrome Society is registered as a tax-exempt nonprofit (EIN: 132992567). Donations to most 501(c)(3) organizations are tax-deductible. Consult a tax professional for your specific situation.
How much does the National Down Syndrome Society CEO make?
National Down Syndrome Society's highest-compensated officer earns $12 annually. The organization reported $6.2M in total revenue. Executive compensation data is disclosed in IRS 990 filings.
What percentage of National Down Syndrome Society's spending goes to programs?
National Down Syndrome Society directs 75% to programs, 10% to fundraising. This exceeds the 65% industry benchmark for efficient nonprofits.
Where is National Down Syndrome Society located?
National Down Syndrome Society is headquartered in New York, New York and files with the IRS under EIN 132992567.
How many years of IRS 990 filings does National Down Syndrome Society have?
National Down Syndrome Society has 13 years of IRS 990 filings on record at NonprofitSpending. This extensive filing history provides a strong basis for evaluating long-term financial trends. The most recent filing shows $6.2M in total revenue.
Is National Down Syndrome Society a good charity?
Based on the available data, NDSS appears to be a reasonably good charity, demonstrating strong asset management and a commitment to its mission through program spending. However, the recent trend of expenses exceeding revenue and the significant fluctuations in annual revenue warrant closer examination for long-term sustainability.
What caused the significant revenue drop from $9.9M in 2017 to $3.3M in 2023?
The provided data does not specify the reasons for the substantial decrease in revenue from $9,969,199 in 201703 to $3,354,289 in 202306. This would require a deeper dive into their Form 990 filings to understand changes in funding sources, grant cycles, or fundraising performance.
How does NDSS manage to report 0% officer compensation?
The consistent reporting of 0% officer compensation is unusual for an organization with assets exceeding $12 million. This could indicate that executive compensation is reported under different expense categories, that the organization relies heavily on volunteer leadership, or that the summary data provided does not capture the full picture of compensation.
Is the recent trend of expenses exceeding revenue sustainable?
In the 202306 period, expenses ($4,160,847) exceeded revenue ($3,354,289). While the organization has substantial assets ($13,503,862), a sustained trend of operating at a deficit could erode reserves and impact long-term financial health. This trend requires careful monitoring.
Filing History
IRS 990 filing history for National Down Syndrome Society showing financial trends over 13 years of public records:
Over 13 years of IRS 990 filings (2012–2023), National Down Syndrome Society's revenue has grown by 57.9%, moving from $2.1M to $3.4M. Total assets increased by 220.9% over the same period, from $4.2M to $13.5M. Total functional expenses rose by 89.1%, from $2.2M to $4.2M. In its most recent filing year (2023), National Down Syndrome Society reported a deficit of $807K, with expenses exceeding revenue. The organization holds $1.1M in liabilities against $13.5M in assets (debt-to-asset ratio: 8.0%), resulting in net assets of $12.4M.
| Year | Revenue | Expenses | Assets | Liabilities | Officer Comp. % | |
|---|---|---|---|---|---|---|
| 2023 | $3.4M | $4.2M | $13.5M | $1.1M | — | View 990 |
| 2022 | $3.7M | $3.4M | $13.1M | $539K | — | View 990 |
| 2021 | $3.5M | $2.7M | $15.3M | $546K | — | View 990 |
| 2020 | $3.1M | $2.8M | $12.4M | $654K | — | View 990 |
| 2019 | $1.4M | $917K | $11.5M | $371K | — | View 990 |
| 2019 | $2.8M | $3.4M | $11.9M | $565K | — | View 990 |
| 2018 | $3.3M | $3.9M | $12.3M | $373K | — | View 990 |
| 2017 | $10.0M | $2.1M | $12.3M | $403K | — | View 990 |
| 2016 | $2.1M | $2.1M | $3.9M | $204K | — | View 990 |
| 2015 | $2.4M | $2.4M | $4.1M | $178K | — | View 990 |
| 2014 | $2.4M | $2.4M | $4.2M | $198K | — | View 990 |
| 2013 | $2.2M | $2.4M | $4.2M | $294K | — | View 990 |
| 2012 | $2.1M | $2.2M | $4.2M | $266K | — | View 990 |
Year-by-Year Financial Summary
- 2023: Revenue of $3.4M, expenses of $4.2M, and assets of $13.5M (revenue -8.2% year-over-year).
- 2022: Revenue of $3.7M, expenses of $3.4M, and assets of $13.1M (revenue +5.9% year-over-year).
- 2021: Revenue of $3.5M, expenses of $2.7M, and assets of $15.3M (revenue +10.3% year-over-year).
- 2020: Revenue of $3.1M, expenses of $2.8M, and assets of $12.4M (revenue +121.8% year-over-year).
- 2019: Revenue of $1.4M, expenses of $917K, and assets of $11.5M (revenue -49.5% year-over-year).
- 2019: Revenue of $2.8M, expenses of $3.4M, and assets of $11.9M (revenue -14.3% year-over-year).
- 2018: Revenue of $3.3M, expenses of $3.9M, and assets of $12.3M (revenue -67.3% year-over-year).
- 2017: Revenue of $10.0M, expenses of $2.1M, and assets of $12.3M (revenue +377.9% year-over-year).
- 2016: Revenue of $2.1M, expenses of $2.1M, and assets of $3.9M (revenue -13.7% year-over-year).
- 2015: Revenue of $2.4M, expenses of $2.4M, and assets of $4.1M (revenue +1.1% year-over-year).
- 2014: Revenue of $2.4M, expenses of $2.4M, and assets of $4.2M (revenue +8.4% year-over-year).
- 2013: Revenue of $2.2M, expenses of $2.4M, and assets of $4.2M (revenue +3.8% year-over-year).
- 2012: Revenue of $2.1M, expenses of $2.2M, and assets of $4.2M.
View Individual Filing Years
Explore detailed financial data from each IRS 990 filing year for National Down Syndrome Society:
Data Sources and Methodology
This transparency report for National Down Syndrome Society is generated by NonprofitSpending's AI analysis engine. The data is sourced from publicly available IRS 990 filings accessed through the ProPublica Nonprofit Explorer API and IRS electronic filing records. The Mission Score, spending breakdown, and other analytical insights are produced by artificial intelligence and should be used as one of multiple factors when evaluating a nonprofit organization.
IRS 990 forms are annual information returns that most tax-exempt organizations must file with the IRS. These forms provide detailed financial information including revenue, expenses, assets, liabilities, and compensation of officers. NonprofitSpending processes this data to provide accessible transparency reports for donors, researchers, and the general public.
Disclaimer
AI-generated analysis based on IRS public records. Not financial or legal advice. Verify information directly with the organization.