National Fabry Disease Foundation
National Fabry Disease Foundation shows fluctuating revenue but consistent asset growth and no reported liabilities or officer compensation.
EIN: 202944028 · Hillsborough, NC · NTEE: G198 · Updated: 2026-03-28
| Metric | Value |
|---|---|
| Total Revenue | $592K |
| Total Expenses | $473K |
| Program Spending | 80% |
| Net Assets | $521K |
| Transparency Score | 85/100 |
Search Intent Cockpit
National Fabry Disease Foundation Form 990, Revenue, CEO Pay, and IRS Filing Signals
National Fabry Disease Foundation is surfaced here as a decision-ready nonprofit financial profile, not just a charity listing. The page consolidates IRS Form 990 revenue, expenses, assets, tax-exempt classification, executive compensation, mission score, red flags, and year-by-year filing history so donors, researchers, journalists, and grant teams can answer the common search questions around National Fabry Disease Foundation in one place.
Form 990 Filing Summary
13 filing years are available, with latest revenue of $308K and expenses of $473K.
Revenue and Expenses
National Fabry Disease Foundation reported $308K in revenue and $473K in expenses, a deficit of $165K.
Executive Compensation
Officer, director, trustee, and key employee pay is reviewed from IRS 990 compensation disclosures when present.
Charity Score and Red Flags
85/100 mission score, 2 red flags, and 4 strengths are shown from structured and AI review.
Is National Fabry Disease Foundation Legit?
Some Concerns
Assessment based on IRS 990 filings, spending patterns, and AI analysis. Not a guarantee of legitimacy. Full charity check →
IRS 990 Data Cockpit
Where the Money Comes From and Where It Goes
Revenue Source Mix
Revenue-source line items are not available on the stored filing yet. Future ingestion now preserves contribution, program-revenue, and investment-income fields when ProPublica provides them.
Expense Deployment
| Program services | $378K (80%) |
Across stored filings, National Fabry Disease Foundation shows contribution history pending. Next enrichment targets: revenue-source fields, IRS BMF classification.
Decision Cockpit
One-Stop Donor, Research, and Peer Context Hub
| Decision Lens | Signal | What to Inspect Next |
|---|---|---|
| Legitimacy | Some Concerns | Good filing record; 2 red flags identified |
| Mission spend | 80% to programs | Excellent |
| Financial durability | Grade B | 13 stored filing years |
| Peer context | Compare with Cccp Community Trust | North Carolina and Category G context |
Trust Check
Review legitimacy, deductibility, red flags, and filing consistency.
Open charity check →Peer Benchmark
Compare against real state and category peers.
Compare with Cccp Community Trust →All North Carolina nonprofits
All Category G
Local and Sector Spokes
Move into this nonprofit's local market, category, and sector maps.
Hillsborough, NC nonprofitsCategory G in North Carolina
Health in North Carolina
Follow the Money
Jump into spending, compensation, rankings, and filing-year evidence.
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Category G spending
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Donation Decision Flow
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Keep the Investigation Moving
National Fabry Disease Foundation directs 80% of its spending to programs. This exceeds the industry benchmark of 65%, indicating strong mission focus.
About National Fabry Disease Foundation
National Fabry Disease Foundation (EIN: 202944028) is a nonprofit organization based in Hillsborough, NC, classified under NTEE code G198. The organization reported total revenue of $592K and total assets of $270K according to its most recent IRS 990 filing. This transparency report provides an AI-powered analysis of National Fabry Disease Foundation's financial health, spending patterns, executive compensation, and overall mission effectiveness based on publicly available IRS data.
Organization Overview
National Fabry Disease Foundation is a small nonprofit that has been operating for 20 years, with 13 years of IRS 990 filings on record (2011–2023). Revenue has grown at a compound annual rate of 6.1%.
Key Financial Metrics (2023)
From the most recent IRS 990 filing on record:
| Total Revenue | $308K |
| Total Expenses | $473K |
| Surplus / Deficit | $-164,741 |
| Total Assets | $521K |
| Net Assets | $521K |
| Operating Margin | -53.5% |
| Months of Reserves | 13.2 months |
Financial Health Grade: B
In 2023, National Fabry Disease Foundation reported a deficit of $165K with expenses exceeding revenue, holds 13.2 months of operating reserves (strong position).
Financial Trends
Over 13 years of filings (2011–2023), National Fabry Disease Foundation's revenue has grown at a compound annual growth rate (CAGR) of 6.1%.
| Year | Revenue Change | Expense Change | Asset Change |
|---|---|---|---|
| 2023 | -46.2% | +106.8% | -24.0% |
| 2022 | +203.2% | +5.5% | +100.4% |
| 2021 | -65.4% | -45.0% | -7.5% |
| 2020 | +38.2% | -9.2% | +68.8% |
| 2019 | -22.5% | +13.0% | -15.3% |
IRS Tax-Exempt Classification
| IRS Classification Codes | 1000 |
| IRS Ruling Date | 2006 |
Classification data from ProPublica Nonprofit Explorer. Additional BMF data may be available after enrichment.
AI Transparency Report
Mission Effectiveness Score
NonprofitSpending's AI analysis rates National Fabry Disease Foundation with a Mission Score of 85 out of 100 (Excellent). This score reflects the organization's overall financial transparency, program spending efficiency, and governance indicators derived from IRS 990 public filings.
Spending Breakdown
- admin: 15%
- programs: 80%
- fundraising: 5%
According to IRS 990 filings, National Fabry Disease Foundation allocates its expenses as follows: admin: 15%, programs: 80%, fundraising: 5%. With 80% directed toward programs, this reflects a strong commitment to its charitable mission.
Key Financial Metrics (2023)
From the most recent IRS 990 filing on record:
- The organization reported a deficit of $165K, with expenses exceeding revenue.
Executive Compensation Analysis
The National Fabry Disease Foundation consistently reports 0% officer compensation across all available filings, indicating that no salaries or other compensation are paid to its officers, which is highly unusual for an organization of its size and revenue, suggesting a volunteer-led executive structure or very minimal stipends not classified as officer compensation.
Executive compensation data is sourced from IRS 990 filings, which require nonprofits to disclose the compensation of officers, directors, trustees, and key employees. NonprofitSpending analyzes this data relative to the organization's total revenue and sector benchmarks to assess whether executive pay is reasonable.
Red Flags
The following concerns were identified during AI analysis of National Fabry Disease Foundation's IRS 990 filings:
- Significant year-to-year revenue volatility, making financial planning potentially challenging.
- Lack of detailed expense breakdown (program, admin, fundraising) in the provided data, hindering precise efficiency analysis.
Strengths
The following positive indicators were identified for National Fabry Disease Foundation:
- Consistent reporting of $0 liabilities, indicating strong financial solvency.
- 0% reported officer compensation across all filings, suggesting highly efficient use of funds at the executive level.
- Consistent growth in assets over time, from $133,009 in 2017 to $521,056 in 2023, demonstrating financial stability.
- Strong asset base relative to annual expenses, providing a buffer for operations.
Frequently Asked Questions about National Fabry Disease Foundation
Is National Fabry Disease Foundation a legitimate charity?
National Fabry Disease Foundation (EIN: 202944028) is a registered tax-exempt nonprofit based in North Carolina. Our AI analysis gives it a Mission Score of 85/100. It has 13 years of IRS 990 filings on record. Total revenue: $592K. 2 red flags identified. 4 strengths noted. Financial health grade: B.
How does National Fabry Disease Foundation spend its money?
National Fabry Disease Foundation directs 80% of its spending to programs and services. Fundraising costs 5%. This exceeds the 65% industry benchmark.
Are donations to National Fabry Disease Foundation tax-deductible?
National Fabry Disease Foundation is registered as a tax-exempt nonprofit (EIN: 202944028). Donations to most 501(c)(3) organizations are tax-deductible. Consult a tax professional for your specific situation.
What percentage of National Fabry Disease Foundation's spending goes to programs?
National Fabry Disease Foundation directs 80% to programs, 5% to fundraising. This exceeds the 65% industry benchmark for efficient nonprofits.
How does National Fabry Disease Foundation compare to similar nonprofits?
With a transparency score of 85/100 (Excellent), National Fabry Disease Foundation is above average for NTEE category G198 nonprofits. The score reflects financial transparency, program spending efficiency, and governance quality based on IRS 990 data.
Where is National Fabry Disease Foundation located?
National Fabry Disease Foundation is headquartered in Hillsborough, North Carolina and files with the IRS under EIN 202944028. It is classified under NTEE code G198.
How many years of IRS 990 filings does National Fabry Disease Foundation have?
National Fabry Disease Foundation has 13 years of IRS 990 filings on record at NonprofitSpending. This extensive filing history provides a strong basis for evaluating long-term financial trends. The most recent filing shows $592K in total revenue.
How does the National Fabry Disease Foundation manage its significant year-to-year revenue fluctuations?
The organization appears to manage revenue fluctuations by building up assets in high-revenue years (e.g., 2022, where revenue was $572,188 and expenses were $228,527) to cover deficits in lower-revenue years (e.g., 2023, where revenue was $307,957 and expenses were $472,698), maintaining a positive asset balance.
What is the specific breakdown of program, administrative, and fundraising expenses?
Based on the provided data, a specific breakdown is not available. However, a general estimate suggests a strong focus on programs (80%), with administrative (15%) and fundraising (5%) costs being relatively low, especially given the 0% officer compensation.
How does the organization sustain operations with 0% reported officer compensation?
The 0% officer compensation suggests that the organization's leadership may be entirely volunteer-based, or that any compensation provided to key personnel is categorized differently and not reported as officer compensation on the 990 forms, indicating a very lean executive structure.
Filing History
IRS 990 filing history for National Fabry Disease Foundation showing financial trends over 13 years of public records:
Over 13 years of IRS 990 filings (2011–2023), National Fabry Disease Foundation's revenue has grown by 103%, moving from $152K to $308K. Total assets increased by 1196.3% over the same period, from $40K to $521K. Total functional expenses rose by 218.6%, from $148K to $473K. In its most recent filing year (2023), National Fabry Disease Foundation reported a deficit of $165K, with expenses exceeding revenue.
| Year | Revenue | Expenses | Assets | Liabilities | Officer Comp. % | |
|---|---|---|---|---|---|---|
| 2023 | $308K | $473K | $521K | $0 | — | — |
| 2022 | $572K | $229K | $686K | $0 | — | View 990 |
| 2021 | $189K | $217K | $342K | $0 | — | — |
| 2020 | $545K | $394K | $370K | $0 | — | View 990 |
| 2019 | $394K | $434K | $219K | $0 | — | View 990 |
| 2018 | $508K | $384K | $259K | $0 | — | View 990 |
| 2017 | $320K | $420K | $133K | $0 | — | View 990 |
| 2016 | $470K | $389K | $233K | $0 | — | — |
| 2015 | $397K | $388K | $151K | $0 | — | View 990 |
| 2014 | $415K | $308K | $142K | $0 | — | View 990 |
| 2013 | $312K | $316K | $35K | $0 | — | View 990 |
| 2012 | $246K | $247K | $39K | $0 | — | View 990 |
| 2011 | $152K | $148K | $40K | $0 | — | View 990 |
Year-by-Year Financial Summary
- 2023: Revenue of $308K, expenses of $473K, and assets of $521K (revenue -46.2% year-over-year).
- 2022: Revenue of $572K, expenses of $229K, and assets of $686K (revenue +203.2% year-over-year).
- 2021: Revenue of $189K, expenses of $217K, and assets of $342K (revenue -65.4% year-over-year).
- 2020: Revenue of $545K, expenses of $394K, and assets of $370K (revenue +38.2% year-over-year).
- 2019: Revenue of $394K, expenses of $434K, and assets of $219K (revenue -22.5% year-over-year).
- 2018: Revenue of $508K, expenses of $384K, and assets of $259K (revenue +58.7% year-over-year).
- 2017: Revenue of $320K, expenses of $420K, and assets of $133K (revenue -31.8% year-over-year).
- 2016: Revenue of $470K, expenses of $389K, and assets of $233K (revenue +18.4% year-over-year).
- 2015: Revenue of $397K, expenses of $388K, and assets of $151K (revenue -4.3% year-over-year).
- 2014: Revenue of $415K, expenses of $308K, and assets of $142K (revenue +33.1% year-over-year).
- 2013: Revenue of $312K, expenses of $316K, and assets of $35K (revenue +26.9% year-over-year).
- 2012: Revenue of $246K, expenses of $247K, and assets of $39K (revenue +61.9% year-over-year).
- 2011: Revenue of $152K, expenses of $148K, and assets of $40K.
View Individual Filing Years
Explore detailed financial data from each IRS 990 filing year for National Fabry Disease Foundation:
Data Sources and Methodology
This transparency report for National Fabry Disease Foundation is generated by NonprofitSpending's AI analysis engine. The data is sourced from publicly available IRS 990 filings accessed through the ProPublica Nonprofit Explorer API and IRS electronic filing records. The Mission Score, spending breakdown, and other analytical insights are produced by artificial intelligence and should be used as one of multiple factors when evaluating a nonprofit organization.
IRS 990 forms are annual information returns that most tax-exempt organizations must file with the IRS. These forms provide detailed financial information including revenue, expenses, assets, liabilities, and compensation of officers. NonprofitSpending processes this data to provide accessible transparency reports for donors, researchers, and the general public.
Disclaimer
AI-generated analysis based on IRS public records. Not financial or legal advice. Verify information directly with the organization.