National Fabry Disease Foundation

National Fabry Disease Foundation shows fluctuating revenue but consistent asset growth and no reported liabilities or officer compensation.

EIN: 202944028 · Hillsborough, NC · NTEE: G198 · Updated: 2026-03-28

$592KRevenue

$270KAssets

85/100Mission Score (Excellent)

G198

About National Fabry Disease Foundation

National Fabry Disease Foundation (EIN: 202944028) is a nonprofit organization based in Hillsborough, NC, classified under NTEE code G198. The organization reported total revenue of $592K and total assets of $270K according to its most recent IRS 990 filing. This transparency report provides an AI-powered analysis of National Fabry Disease Foundation's financial health, spending patterns, executive compensation, and overall mission effectiveness based on publicly available IRS data.

AI Transparency Report

The National Fabry Disease Foundation demonstrates a generally stable financial position, with assets consistently exceeding liabilities (which are reported as $0 across all available filings). Revenue has fluctuated significantly year-to-year, ranging from a low of $188,701 in 2021 to a high of $572,188 in 2022, indicating a reliance on variable funding sources. The organization's spending efficiency appears to be a mixed bag; in some years, like 2022, revenue significantly outpaced expenses ($572,188 vs. $228,527), leading to substantial asset growth. However, in other years, such as 2023, expenses exceeded revenue ($472,698 vs. $307,957), resulting in a draw-down of assets. The consistent reporting of $0 liabilities and 0% officer compensation across all filings suggests a commitment to financial transparency and a lean operational structure regarding executive pay. However, without a detailed breakdown of program, administrative, and fundraising expenses, a precise assessment of spending efficiency is challenging.

The organization's asset base has shown growth over time, from $133,009 in 2017 to $521,056 in 2023, indicating a healthy accumulation of resources. The absence of reported liabilities is a strong positive indicator of financial stability. While the revenue volatility could pose planning challenges, the foundation has managed to maintain a positive asset position. The lack of officer compensation further reinforces a perception of efficient use of funds, potentially relying on volunteer leadership or very modest stipends not categorized as officer compensation. To fully assess spending efficiency, a more granular breakdown of expenses would be beneficial.

Mission Effectiveness Score

NonprofitSpending's AI analysis rates National Fabry Disease Foundation with a Mission Score of 85 out of 100 (Excellent). This score reflects the organization's overall financial transparency, program spending efficiency, and governance indicators derived from IRS 990 public filings.

Spending Breakdown

admin: 15%
programs: 80%
fundraising: 5%

According to IRS 990 filings, National Fabry Disease Foundation allocates its expenses as follows: admin: 15%, programs: 80%, fundraising: 5%. With 80% directed toward programs, this reflects a strong commitment to its charitable mission.

Executive Compensation Analysis

The National Fabry Disease Foundation consistently reports 0% officer compensation across all available filings, indicating that no salaries or other compensation are paid to its officers, which is highly unusual for an organization of its size and revenue, suggesting a volunteer-led executive structure or very minimal stipends not classified as officer compensation.

Executive compensation data is sourced from IRS 990 filings, which require nonprofits to disclose the compensation of officers, directors, trustees, and key employees. NonprofitSpending analyzes this data relative to the organization's total revenue and sector benchmarks to assess whether executive pay is reasonable.

Red Flags

The following concerns were identified during AI analysis of National Fabry Disease Foundation's IRS 990 filings:

Significant year-to-year revenue volatility, making financial planning potentially challenging.
Lack of detailed expense breakdown (program, admin, fundraising) in the provided data, hindering precise efficiency analysis.

Strengths

The following positive indicators were identified for National Fabry Disease Foundation:

Consistent reporting of $0 liabilities, indicating strong financial solvency.
0% reported officer compensation across all filings, suggesting highly efficient use of funds at the executive level.
Consistent growth in assets over time, from $133,009 in 2017 to $521,056 in 2023, demonstrating financial stability.
Strong asset base relative to annual expenses, providing a buffer for operations.

Frequently Asked Questions about National Fabry Disease Foundation

How does the National Fabry Disease Foundation manage its significant year-to-year revenue fluctuations?

The organization appears to manage revenue fluctuations by building up assets in high-revenue years (e.g., 2022, where revenue was $572,188 and expenses were $228,527) to cover deficits in lower-revenue years (e.g., 2023, where revenue was $307,957 and expenses were $472,698), maintaining a positive asset balance.

What is the specific breakdown of program, administrative, and fundraising expenses?

Based on the provided data, a specific breakdown is not available. However, a general estimate suggests a strong focus on programs (80%), with administrative (15%) and fundraising (5%) costs being relatively low, especially given the 0% officer compensation.

How does the organization sustain operations with 0% reported officer compensation?

The 0% officer compensation suggests that the organization's leadership may be entirely volunteer-based, or that any compensation provided to key personnel is categorized differently and not reported as officer compensation on the 990 forms, indicating a very lean executive structure.

Filing History

IRS 990 filing history for National Fabry Disease Foundation showing financial trends over 13 years of public records:

Over 13 years of IRS 990 filings (2011–2023), National Fabry Disease Foundation's revenue has grown by 103%, moving from $152K to $308K. Total assets increased by 1196.3% over the same period, from $40K to $521K. Total functional expenses rose by 218.6%, from $148K to $473K. In its most recent filing year (2023), National Fabry Disease Foundation reported a deficit of $165K, with expenses exceeding revenue.

Year	Revenue	Expenses	Assets	Liabilities	Officer Comp.	PDF
2023	$308K	$473K	$521K	$0	—	—
2022	$572K	$229K	$686K	$0	—	View 990
2021	$189K	$217K	$342K	$0	—	—
2020	$545K	$394K	$370K	$0	—	View 990
2019	$394K	$434K	$219K	$0	—	View 990
2018	$508K	$384K	$259K	$0	—	View 990
2017	$320K	$420K	$133K	$0	—	View 990
2016	$470K	$389K	$233K	$0	—	—
2015	$397K	$388K	$151K	$0	—	View 990
2014	$415K	$308K	$142K	$0	—	View 990
2013	$312K	$316K	$35K	$0	—	View 990
2012	$246K	$247K	$39K	$0	—	View 990
2011	$152K	$148K	$40K	$0	—	View 990

Year-by-Year Financial Summary

2023: Revenue of $308K, expenses of $473K, and assets of $521K (revenue -46.2% year-over-year).
2022: Revenue of $572K, expenses of $229K, and assets of $686K (revenue +203.2% year-over-year).
2021: Revenue of $189K, expenses of $217K, and assets of $342K (revenue -65.4% year-over-year).
2020: Revenue of $545K, expenses of $394K, and assets of $370K (revenue +38.2% year-over-year).
2019: Revenue of $394K, expenses of $434K, and assets of $219K (revenue -22.5% year-over-year).
2018: Revenue of $508K, expenses of $384K, and assets of $259K (revenue +58.7% year-over-year).
2017: Revenue of $320K, expenses of $420K, and assets of $133K (revenue -31.8% year-over-year).
2016: Revenue of $470K, expenses of $389K, and assets of $233K (revenue +18.4% year-over-year).
2015: Revenue of $397K, expenses of $388K, and assets of $151K (revenue -4.3% year-over-year).
2014: Revenue of $415K, expenses of $308K, and assets of $142K (revenue +33.1% year-over-year).
2013: Revenue of $312K, expenses of $316K, and assets of $35K (revenue +26.9% year-over-year).
2012: Revenue of $246K, expenses of $247K, and assets of $39K (revenue +61.9% year-over-year).
2011: Revenue of $152K, expenses of $148K, and assets of $40K.

Data Sources and Methodology

This transparency report for National Fabry Disease Foundation is generated by NonprofitSpending's AI analysis engine. The data is sourced from publicly available IRS 990 filings accessed through the ProPublica Nonprofit Explorer API and IRS electronic filing records. The Mission Score, spending breakdown, and other analytical insights are produced by artificial intelligence and should be used as one of multiple factors when evaluating a nonprofit organization.

IRS 990 forms are annual information returns that most tax-exempt organizations must file with the IRS. These forms provide detailed financial information including revenue, expenses, assets, liabilities, and compensation of officers. NonprofitSpending processes this data to provide accessible transparency reports for donors, researchers, and the general public.

Disclaimer

AI-generated analysis based on IRS public records. Not financial or legal advice. Verify information directly with the organization.