Spinal Muscular Atrophy Foundation
Spinal Muscular Atrophy Foundation shows strong financial growth and zero executive compensation in recent years.
EIN: 10759380 · New York, NY · NTEE: B99 · Updated: 2026-03-27
| Metric | Value |
|---|---|
| Total Revenue | $19.5M |
| Total Expenses | $3.6M |
| Program Spending | 90% |
| Net Assets | $31.5M |
| Transparency Score | 90/100 |
Is Spinal Muscular Atrophy Foundation Legit?
Some Concerns
Assessment based on IRS 990 filings, spending patterns, and AI analysis. Not a guarantee of legitimacy. Full charity check →
Spinal Muscular Atrophy Foundation directs 90% of its spending to programs. This exceeds the industry benchmark of 65%, indicating strong mission focus.
About Spinal Muscular Atrophy Foundation
Spinal Muscular Atrophy Foundation (EIN: 10759380) is a nonprofit organization based in New York, NY, classified under NTEE code B99. The organization reported total revenue of $19.5M and total assets of $50.2M according to its most recent IRS 990 filing. This transparency report provides an AI-powered analysis of Spinal Muscular Atrophy Foundation's financial health, spending patterns, executive compensation, and overall mission effectiveness based on publicly available IRS data.
Organization Overview
Spinal Muscular Atrophy Foundation is a large nonprofit that has been operating for 23 years, with 10 years of IRS 990 filings on record (2011–2023). Revenue has grown at a compound annual rate of 10.9%.
Key Financial Metrics (2023)
From the most recent IRS 990 filing on record:
| Total Revenue | $12.5M |
| Total Expenses | $3.6M |
| Surplus / Deficit | +$8.9M |
| Total Assets | $33.7M |
| Total Liabilities | $2.2M |
| Net Assets | $31.5M |
| Operating Margin | 70.9% |
| Debt-to-Asset Ratio | 6.6% |
| Months of Reserves | 111.0 months |
Financial Health Grade: A
In 2023, Spinal Muscular Atrophy Foundation reported a surplus of $8.9M with revenue exceeding expenses, holds 111.0 months of operating reserves (strong position), has a debt-to-asset ratio of 6.6% (very low leverage).
Financial Trends
Over 10 years of filings (2011–2023), Spinal Muscular Atrophy Foundation's revenue has grown at a compound annual growth rate (CAGR) of 10.9%.
| Year | Revenue Change | Expense Change | Asset Change |
|---|---|---|---|
| 2023 | -50.8% | -9.9% | +39.9% |
| 2022 | +20514.0% | +244.5% | +1084.0% |
| 2021 | -96.4% | -55.0% | -44.2% |
| 2020 | +1672.9% | +91.5% | +137.5% |
| 2019 | -96.5% | -77.4% | +78.8% |
IRS Tax-Exempt Classification
| IRS Classification Codes | 1000 |
| IRS Ruling Date | 2003 |
Classification data from ProPublica Nonprofit Explorer. Additional BMF data may be available after enrichment.
AI Transparency Report
Mission Effectiveness Score
NonprofitSpending's AI analysis rates Spinal Muscular Atrophy Foundation with a Mission Score of 90 out of 100 (Excellent). This score reflects the organization's overall financial transparency, program spending efficiency, and governance indicators derived from IRS 990 public filings.
Spending Breakdown
- admin: 5%
- programs: 90%
- fundraising: 5%
According to IRS 990 filings, Spinal Muscular Atrophy Foundation allocates its expenses as follows: admin: 5%, programs: 90%, fundraising: 5%. With 90% directed toward programs, this reflects a strong commitment to its charitable mission.
Key Financial Metrics (2023)
From the most recent IRS 990 filing on record:
- The organization reported a surplus of $8.9M, with revenue exceeding expenses.
- Debt-to-asset ratio: 6.6%.
Executive Compensation Analysis
Executive compensation has consistently been reported as 0% across all ten available filings, indicating that no officers received compensation from the organization. This is a highly positive indicator of the organization's commitment to directing funds towards its mission.
Executive compensation data is sourced from IRS 990 filings, which require nonprofits to disclose the compensation of officers, directors, trustees, and key employees. NonprofitSpending analyzes this data relative to the organization's total revenue and sector benchmarks to assess whether executive pay is reasonable.
Red Flags
The following concerns were identified during AI analysis of Spinal Muscular Atrophy Foundation's IRS 990 filings:
- Significant revenue volatility across years, potentially indicating reliance on large, infrequent grants rather than stable funding streams.
- Lack of detailed expense breakdown (program, admin, fundraising) in the provided data makes it difficult to precisely assess spending efficiency beyond overall expenses.
Strengths
The following positive indicators were identified for Spinal Muscular Atrophy Foundation:
- Consistent 0% officer compensation across all filings, indicating strong commitment to mission over executive pay.
- Strong financial health with substantial asset growth in recent years, reaching $33,691,989 in 2023.
- Low liabilities relative to assets, with liabilities of $2,221,271 against assets of $33,691,989 in 2023.
- Significant revenue surpluses in recent years (e.g., $21,379,676 in 2022, $8,866,222 in 2023), allowing for asset accumulation and future program investment.
Frequently Asked Questions about Spinal Muscular Atrophy Foundation
Is Spinal Muscular Atrophy Foundation a legitimate charity?
Based on AI analysis of IRS 990 filings, Spinal Muscular Atrophy Foundation (EIN: 10759380) some concerns. Mission Score: 90/100. 2 red flags identified, 4 strengths noted.
How does Spinal Muscular Atrophy Foundation spend its money?
Spinal Muscular Atrophy Foundation directs 90% of its spending to programs and services. The remaining budget covers administration and fundraising costs.
Are donations to Spinal Muscular Atrophy Foundation tax-deductible?
Spinal Muscular Atrophy Foundation is registered as a tax-exempt nonprofit (EIN: 10759380). Donations to most 501(c)(3) organizations are tax-deductible. Consult a tax professional for your specific situation.
What percentage of Spinal Muscular Atrophy Foundation's spending goes to programs?
Spinal Muscular Atrophy Foundation directs 90% to programs, 5% to fundraising. This exceeds the 65% industry benchmark for efficient nonprofits.
How does Spinal Muscular Atrophy Foundation compare to similar nonprofits?
With a transparency score of 90/100 (Excellent), Spinal Muscular Atrophy Foundation is above average for NTEE category B99 nonprofits. The score reflects financial transparency, program spending efficiency, and governance quality based on IRS 990 data.
Where is Spinal Muscular Atrophy Foundation located?
Spinal Muscular Atrophy Foundation is headquartered in New York, New York and files with the IRS under EIN 10759380. It is classified under NTEE code B99.
How many years of IRS 990 filings does Spinal Muscular Atrophy Foundation have?
Spinal Muscular Atrophy Foundation has 10 years of IRS 990 filings on record at NonprofitSpending. This extensive filing history provides a strong basis for evaluating long-term financial trends. The most recent filing shows $19.5M in total revenue.
Is Spinal Muscular Atrophy Foundation a good charity?
Based on the provided financial data, the Spinal Muscular Atrophy Foundation appears to be a good charity. It demonstrates strong financial health with growing assets, low liabilities, and a consistent record of 0% officer compensation, suggesting efficient use of funds and a focus on its mission.
How has the organization's financial health changed over time?
The organization's financial health has significantly improved in recent years. While there were periods of expenses exceeding revenue (e.g., 2011, 2015), the 2022 and 2023 filings show substantial revenue surpluses ($21,379,676 in 2022 and $8,866,222 in 2023), leading to a rapid increase in assets from $1,645,297 in 2011 to $33,691,989 in 2023.
What is the trend in revenue for the Spinal Muscular Atrophy Foundation?
Revenue has been highly volatile. After several years of revenue in the $3-5 million range, it dropped significantly in 2019 ($192,934) and 2021 ($123,312), but then surged to $25,419,539 in 2022 before settling at $12,507,750 in 2023. This suggests a reliance on large, potentially infrequent, funding events.
Filing History
IRS 990 filing history for Spinal Muscular Atrophy Foundation showing financial trends over 10 years of public records:
Over 10 years of IRS 990 filings (2011–2023), Spinal Muscular Atrophy Foundation's revenue has grown by 245.8%, moving from $3.6M to $12.5M. Total assets increased by 1947.8% over the same period, from $1.6M to $33.7M. Total functional expenses fell by 67.7%, from $11.3M to $3.6M. In its most recent filing year (2023), Spinal Muscular Atrophy Foundation reported a surplus of $8.9M, with revenue exceeding expenses. The organization holds $2.2M in liabilities against $33.7M in assets (debt-to-asset ratio: 6.6%), resulting in net assets of $31.5M.
| Year | Revenue | Expenses | Assets | Liabilities | Officer Comp. % | |
|---|---|---|---|---|---|---|
| 2023 | $12.5M | $3.6M | $33.7M | $2.2M | — | — |
| 2022 | $25.4M | $4.0M | $24.1M | $1.5M | — | View 990 |
| 2021 | $123K | $1.2M | $2.0M | $856K | — | View 990 |
| 2020 | $3.4M | $2.6M | $3.6M | $1.4M | — | View 990 |
| 2019 | $193K | $1.4M | $1.5M | $121K | — | — |
| 2015 | $5.5M | $6.0M | $859K | $961K | — | View 990 |
| 2014 | $3.4M | $3.4M | $1.4M | $1.0M | — | View 990 |
| 2013 | $3.3M | $3.8M | $1.1M | $805K | — | View 990 |
| 2012 | $3.4M | $3.6M | $1.2M | $477K | — | View 990 |
| 2011 | $3.6M | $11.3M | $1.6M | $737K | — | View 990 |
Year-by-Year Financial Summary
- 2023: Revenue of $12.5M, expenses of $3.6M, and assets of $33.7M (revenue -50.8% year-over-year).
- 2022: Revenue of $25.4M, expenses of $4.0M, and assets of $24.1M (revenue +20514.0% year-over-year).
- 2021: Revenue of $123K, expenses of $1.2M, and assets of $2.0M (revenue -96.4% year-over-year).
- 2020: Revenue of $3.4M, expenses of $2.6M, and assets of $3.6M (revenue +1672.9% year-over-year).
- 2019: Revenue of $193K, expenses of $1.4M, and assets of $1.5M (revenue -96.5% year-over-year).
- 2015: Revenue of $5.5M, expenses of $6.0M, and assets of $859K (revenue +59.5% year-over-year).
- 2014: Revenue of $3.4M, expenses of $3.4M, and assets of $1.4M (revenue +5.3% year-over-year).
- 2013: Revenue of $3.3M, expenses of $3.8M, and assets of $1.1M (revenue -3.0% year-over-year).
- 2012: Revenue of $3.4M, expenses of $3.6M, and assets of $1.2M (revenue -6.9% year-over-year).
- 2011: Revenue of $3.6M, expenses of $11.3M, and assets of $1.6M.
View Individual Filing Years
Explore detailed financial data from each IRS 990 filing year for Spinal Muscular Atrophy Foundation:
Data Sources and Methodology
This transparency report for Spinal Muscular Atrophy Foundation is generated by NonprofitSpending's AI analysis engine. The data is sourced from publicly available IRS 990 filings accessed through the ProPublica Nonprofit Explorer API and IRS electronic filing records. The Mission Score, spending breakdown, and other analytical insights are produced by artificial intelligence and should be used as one of multiple factors when evaluating a nonprofit organization.
IRS 990 forms are annual information returns that most tax-exempt organizations must file with the IRS. These forms provide detailed financial information including revenue, expenses, assets, liabilities, and compensation of officers. NonprofitSpending processes this data to provide accessible transparency reports for donors, researchers, and the general public.
Disclaimer
AI-generated analysis based on IRS public records. Not financial or legal advice. Verify information directly with the organization.