Amyotrophic Lateral Sclerosis Assn
ALS Association experiences significant revenue fluctuations, maintaining strong asset base despite periods of deficit spending.
EIN: 133271855 · Arlington, VA · NTEE: G500 · Updated: 2026-03-28
Source Check Matrix
What Has Been Verified vs. What Needs Human Review
Identity resolved verified
Amyotrophic Lateral Sclerosis Assn is mapped to EIN 133271855.
IRS BMF exempt record needs review
Open IRS TEOS or BMF source before relying on exemption status.
IRS Pub 78 deductibility needs review
Pub 78 eligibility should be verified in IRS TEOS before money changes hands.
IRS automatic revocation needs review
Check the official auto-revocation bulk source or cached evidence before relying on current exemption.
IRS Form 990 index verified
13 stored filing years available.
Raw 990 source linked
Open ProPublica to verify the raw filing record and PDFs.
Filing depth verified
13 stored filing years available.
State charity registration manual confirmation
Open Virginia charity search; the workflow stops for human confirmation unless a stable source is cached.
Candid / GuideStar profile api pending
Candid API access is not configured; open manually and do not count as verified evidence.
Charity Navigator rating api pending
Charity Navigator API access is not configured; open manually and do not count as verified evidence.
Source and Resolution Links
Finish the Investigation Outside Our Dataset
When the answer lives with the IRS, ProPublica, Candid, Charity Navigator, or the nonprofit itself, NonprofitSpending links out instead of trapping the user on a partial answer.
IRS tax-exempt lookup
Verify exemption status and deductibility directly with the IRS.
IRS bulk evidence downloads
Check Pub 78, automatic revocation, 990-N, and Form 990 bulk evidence sources.
IRS EO BMF extract
Open the official Business Master File extract source for tax-exempt organization records.
ProPublica 990 source
Open the raw filing record and filing PDFs outside NonprofitSpending.
Virginia charity search
Confirm state charity registration or solicitation status where applicable.
Candid profile search
Look for GuideStar/Candid profile details, programs, leadership, and seals.
Charity Navigator search
Check whether another evaluator has ratings or impact context.
Workflow Engine
Queries We Should Resolve, Not Just Answer
Search Console demand points to task completion. Each workflow can run calculations, source checks, external lookups, comparisons, and report/export capture around this nonprofit.
Verify tax status Runnable
Triggered by: 501(c)(3), tax deductible, EIN
IRS status check plus source links
Verify official evidence Runnable
Triggered by: IRS Pub 78, BMF, revocation, 990 index, state registration
Official-source evidence matrix with human stops where a state portal must be checked.
Resolve tax deductibility Runnable
Triggered by: is my donation tax deductible, Pub 78, donor receipt
Pub 78, BMF, and revocation checks turned into a donor-safe deductibility path.
Check state solicitation Runnable
Triggered by: allowed to solicit, charity registration, state compliance
Official state regulator route with human confirmation when no reliable API exists.
Find source filings Runnable
Triggered by: 990 PDF, annual report, filing record
13 stored filing years plus ProPublica source
Crunch money signals Runnable
Triggered by: program expense ratio, CEO salary, revenue, grants
75% program spend, health grade A
Compare alternatives Runnable
Triggered by: best charities, similar nonprofits, compare
4 peer options surfaced
Resolve leadership and board Runnable
Triggered by: executive team, trustees, officer pay
Use 990 compensation disclosures and external profile links.
Analyze executive compensation Runnable
Triggered by: CEO salary, excessive compensation, officer pay
Officer-pay context against revenue, filings, state/category compensation, and source records.
Donation decision copilot Runnable
Triggered by: should I donate, give or compare, charity safety
Eligibility, money signals, sources, peer context, and next action.
Grantmaker due diligence Runnable
Triggered by: foundation review, grant risk, grantee capacity
Foundation-style packet across filings, finances, governance, and gaps.
Build grant/funder shortlist Runnable
Triggered by: find funders, grantee shortlist, mission fit
Geography, cause, evidence gaps, and peers converted into a funder/grantee action path.
Impact evidence finder Runnable
Triggered by: outcomes, annual report, cost effectiveness
Separate actual impact evidence from raw 990 financial cleanliness.
Room for more funding Runnable
Triggered by: would my donation help, funding gap, marginal impact
Revenue trend, runway, surplus/deficit, and source follow-ups.
Operator transparency diagnostic Runnable
Triggered by: how does my nonprofit look to donors
Profile, filing, impact, and transparency improvements to earn trust.
Create compliance monitor Runnable
Triggered by: watch new 990, revocation, Pub 78, registration changes
Monitoring plan for IRS status, new filings, revocation signals, and state follow-ups.
| Metric | Value |
|---|---|
| Total Revenue | $102.4M |
| Total Expenses | $98.8M |
| Program Spending | 75% |
| CEO/Top Officer Pay | $100 |
| Net Assets | $98.1M |
| Transparency Score | 75/100 |
Search Intent Cockpit
Amyotrophic Lateral Sclerosis Assn Form 990, Revenue, CEO Pay, and IRS Filing Signals
Amyotrophic Lateral Sclerosis Assn is surfaced here as a decision-ready nonprofit financial profile, not just a charity listing. The page consolidates IRS Form 990 revenue, expenses, assets, tax-exempt classification, executive compensation, mission score, red flags, and year-by-year filing history so donors, researchers, journalists, and grant teams can answer the common search questions around Amyotrophic Lateral Sclerosis Assn in one place.
Form 990 Filing Summary
13 filing years are available, with latest revenue of $126.5M and expenses of $98.8M.
Revenue and Expenses
Amyotrophic Lateral Sclerosis Assn reported $126.5M in revenue and $98.8M in expenses, a surplus of $27.6M.
Executive Compensation
Top officer compensation appears as $100 in the stored analysis, with context against revenue and expenses below.
Charity Score and Red Flags
75/100 mission score, 2 red flags, and 4 strengths are shown from structured and AI review.
Is Amyotrophic Lateral Sclerosis Assn Legit?
Some Concerns
Assessment based on IRS 990 filings, spending patterns, and AI analysis. Not a guarantee of legitimacy. Full charity check →
IRS 990 Data Cockpit
Where the Money Comes From and Where It Goes
Revenue Source Mix
Revenue-source line items are not available on the stored filing yet. Future ingestion now preserves contribution, program-revenue, and investment-income fields when ProPublica provides them.
Expense Deployment
| Program services | $74.1M (75%) |
Across stored filings, Amyotrophic Lateral Sclerosis Assn shows contribution history pending. Next enrichment targets: revenue-source fields, IRS BMF classification.
Decision Cockpit
One-Stop Donor, Research, and Peer Context Hub
| Decision Lens | Signal | What to Inspect Next |
|---|---|---|
| Legitimacy | Some Concerns | Good filing record; 2 red flags identified |
| Mission spend | 75% to programs | Excellent |
| Financial durability | Grade A | 13 stored filing years |
| Peer context | Compare with Association Of Small Business Development Centers | Virginia and Category G context |
Trust Check
Review legitimacy, deductibility, red flags, and filing consistency.
Open charity check →Peer Benchmark
Compare against real state and category peers.
Compare with Association Of Small Business Development Centers →All Virginia nonprofits
All Category G
Local and Sector Spokes
Move into this nonprofit's local market, category, and sector maps.
Arlington, VA nonprofitsCategory G in Virginia
Health in Virginia
Follow the Money
Jump into spending, compensation, rankings, and filing-year evidence.
State spending analysisState compensation analysis
Category G spending
Best Category G charities in Virginia
Relevant rankings
Donation Decision Flow
From Trust Check to Better Alternatives
Alternative Shopping
Similar Nonprofits Donors Should Compare
The Pharmaceutical Security Institute Inc
Vienna, VA · $1.9M revenue · Score 92/100
Compare side-by-sideAshburn Travel Hockey Inc
Ashburn, VA · $1.1M revenue · Score 92/100
Compare side-by-sideFaithworks Inc
Winchester, VA · $330K revenue · Score 90/100
Compare side-by-sideMetropolitan School Of The Arts
Alexandria, VA · $3.3M revenue · Score 88/100
Compare side-by-sideNext Best Actions
Keep the Investigation Moving
Research Workflow
Turn this Form 990 profile into a donor-ready report
Request a concise report for Amyotrophic Lateral Sclerosis Assn with revenue, expenses, executive compensation, red flags, peer context, and IRS source links. You can also request CSV exports or watchlist updates for future filings.
Early access request only. Reports and exports are informational and based on public IRS records, not financial or legal advice.
Amyotrophic Lateral Sclerosis Assn directs 75% of its spending to programs. This exceeds the industry benchmark of 65%, indicating strong mission focus.
About Amyotrophic Lateral Sclerosis Assn
Amyotrophic Lateral Sclerosis Assn (EIN: 133271855) is a nonprofit organization based in Arlington, VA, classified under NTEE code G500. The organization reported total revenue of $102.4M and total assets of $107.2M according to its most recent IRS 990 filing. This transparency report provides an AI-powered analysis of Amyotrophic Lateral Sclerosis Assn's financial health, spending patterns, executive compensation, and overall mission effectiveness based on publicly available IRS data.
Organization Overview
Amyotrophic Lateral Sclerosis Assn is a major nonprofit that has been operating for 36 years, with 13 years of IRS 990 filings on record (2012–2024). Revenue has grown at a compound annual rate of 16.7%.
Key Financial Metrics (2024)
From the most recent IRS 990 filing on record:
| Total Revenue | $126.5M |
| Total Expenses | $98.8M |
| Surplus / Deficit | +$27.6M |
| Total Assets | $127.9M |
| Total Liabilities | $29.8M |
| Net Assets | $98.1M |
| Operating Margin | 21.8% |
| Debt-to-Asset Ratio | 23.3% |
| Months of Reserves | 15.5 months |
Financial Health Grade: A
In 2024, Amyotrophic Lateral Sclerosis Assn reported a surplus of $27.6M with revenue exceeding expenses, holds 15.5 months of operating reserves (strong position), has a debt-to-asset ratio of 23.3% (moderate leverage).
Financial Trends
Over 13 years of filings (2012–2024), Amyotrophic Lateral Sclerosis Assn's revenue has grown at a compound annual growth rate (CAGR) of 16.7%.
| Year | Revenue Change | Expense Change | Asset Change |
|---|---|---|---|
| 2024 | +127.6% | +17.4% | +35.4% |
| 2023 | +39.6% | +87.7% | -4.0% |
| 2022 | +13.3% | +16.7% | -1.9% |
| 2021 | -5.2% | -8.1% | +2.3% |
| 2020 | +36.8% | +19.8% | +1.8% |
IRS Tax-Exempt Classification
| IRS Classification Codes | 1000 |
| IRS Ruling Date | 1990 |
Classification data from ProPublica Nonprofit Explorer. Additional BMF data may be available after enrichment.
AI Transparency Report
Mission Effectiveness Score
NonprofitSpending's AI analysis rates Amyotrophic Lateral Sclerosis Assn with a Mission Score of 75 out of 100 (Good). This score reflects the organization's overall financial transparency, program spending efficiency, and governance indicators derived from IRS 990 public filings.
Spending Breakdown
- admin: 15%
- programs: 75%
- fundraising: 10%
According to IRS 990 filings, Amyotrophic Lateral Sclerosis Assn allocates its expenses as follows: admin: 15%, programs: 75%, fundraising: 10%. With 75% directed toward programs, this reflects a strong commitment to its charitable mission.
Key Financial Metrics (2024)
From the most recent IRS 990 filing on record:
- The organization reported a surplus of $27.6M, with revenue exceeding expenses.
- Debt-to-asset ratio: 23.3%.
Executive Compensation Analysis
The provided data consistently reports 0% officer compensation, which is unusual for an organization of this size with over $100 million in assets and revenue. This suggests that executive compensation is either not reported in this specific field of the filing summary or is categorized differently, requiring further investigation for a complete understanding of compensation practices.
Executive compensation data is sourced from IRS 990 filings, which require nonprofits to disclose the compensation of officers, directors, trustees, and key employees. NonprofitSpending analyzes this data relative to the organization's total revenue and sector benchmarks to assess whether executive pay is reasonable.
Red Flags
The following concerns were identified during AI analysis of Amyotrophic Lateral Sclerosis Assn's IRS 990 filings:
- Consistent reporting of 0% officer compensation, which may obscure actual executive pay without further detail.
- Multiple years of expenses exceeding revenue (e.g., 2023, 2022, 2021, 2020, 2019, 2018, 2017, 2016), indicating reliance on reserves during those periods.
Strengths
The following positive indicators were identified for Amyotrophic Lateral Sclerosis Assn:
- Strong asset base, consistently over $94 million, providing financial stability and resilience.
- Demonstrated ability to generate significant revenue through major campaigns, as seen in 2015 ($138M) and 2024 ($126M).
- Consistent IRS 990 filing history (13 filings), indicating compliance and transparency in reporting.
- Substantial growth in assets from $107M to $127M in the latest reported period (2024).
Frequently Asked Questions about Amyotrophic Lateral Sclerosis Assn
Is Amyotrophic Lateral Sclerosis Assn a legitimate charity?
Amyotrophic Lateral Sclerosis Assn (EIN: 133271855) is a registered tax-exempt nonprofit based in Virginia. Our AI analysis gives it a Mission Score of 75/100. It has 13 years of IRS 990 filings on record. Total revenue: $102.4M. 2 red flags identified. 4 strengths noted. Financial health grade: A.
How does Amyotrophic Lateral Sclerosis Assn spend its money?
Amyotrophic Lateral Sclerosis Assn directs 75% of its spending to programs and services. Fundraising costs 10%. This exceeds the 65% industry benchmark.
Are donations to Amyotrophic Lateral Sclerosis Assn tax-deductible?
Amyotrophic Lateral Sclerosis Assn is registered as a tax-exempt nonprofit (EIN: 133271855). Donations to most 501(c)(3) organizations are tax-deductible. Consult a tax professional for your specific situation.
How much does the Amyotrophic Lateral Sclerosis Assn CEO make?
Amyotrophic Lateral Sclerosis Assn's highest-compensated officer earns $100 annually. The organization reported $102.4M in total revenue. Executive compensation data is disclosed in IRS 990 filings.
What percentage of Amyotrophic Lateral Sclerosis Assn's spending goes to programs?
Amyotrophic Lateral Sclerosis Assn directs 75% to programs, 10% to fundraising. This exceeds the 65% industry benchmark for efficient nonprofits.
How does Amyotrophic Lateral Sclerosis Assn compare to similar nonprofits?
With a transparency score of 75/100 (Good), Amyotrophic Lateral Sclerosis Assn is above average for NTEE category G500 nonprofits. The score reflects financial transparency, program spending efficiency, and governance quality based on IRS 990 data.
Where is Amyotrophic Lateral Sclerosis Assn located?
Amyotrophic Lateral Sclerosis Assn is headquartered in Arlington, Virginia and files with the IRS under EIN 133271855. It is classified under NTEE code G500.
How many years of IRS 990 filings does Amyotrophic Lateral Sclerosis Assn have?
Amyotrophic Lateral Sclerosis Assn has 13 years of IRS 990 filings on record at NonprofitSpending. This extensive filing history provides a strong basis for evaluating long-term financial trends. The most recent filing shows $102.4M in total revenue.
What caused the significant revenue spikes in 2015 and 2024?
The substantial revenue increase in 2015 ($138,340,559) is widely attributed to the 'Ice Bucket Challenge.' The recent spike in 2024 ($126,450,238) would require further investigation into specific fundraising initiatives or major donations during that period.
How does the organization manage years where expenses exceed revenue?
In several periods (e.g., 2023, 2022, 2021, 2020, 2019, 2018, 2017, 2016), expenses surpassed revenue. The organization appears to manage these deficits by drawing upon its substantial asset base, which has consistently remained above $94 million, demonstrating financial resilience.
Where is executive compensation reported if 'Officer Comp' is consistently 0%?
The consistent reporting of 0% for 'Officer Comp' in the provided summaries suggests that executive compensation might be included within other expense categories (e.g., salaries and wages) or reported in a different section of the full IRS Form 990, which would require reviewing the detailed filing for clarity.
Filing History
IRS 990 filing history for Amyotrophic Lateral Sclerosis Assn showing financial trends over 13 years of public records:
Over 13 years of IRS 990 filings (2012–2024), Amyotrophic Lateral Sclerosis Assn's revenue has grown by 540%, moving from $19.8M to $126.5M. Total assets increased by 531.4% over the same period, from $20.3M to $127.9M. Total functional expenses rose by 524.6%, from $15.8M to $98.8M. In its most recent filing year (2024), Amyotrophic Lateral Sclerosis Assn reported a surplus of $27.6M, with revenue exceeding expenses. The organization holds $29.8M in liabilities against $127.9M in assets (debt-to-asset ratio: 23.3%), resulting in net assets of $98.1M.
| Year | Revenue | Expenses | Assets | Liabilities | Officer Comp. % | |
|---|---|---|---|---|---|---|
| 2024 | $126.5M | $98.8M | $127.9M | $29.8M | — | View 990 |
| 2023 | $55.6M | $84.2M | $94.4M | $30.2M | — | View 990 |
| 2022 | $39.8M | $44.9M | $98.3M | $7.3M | — | View 990 |
| 2021 | $35.1M | $38.4M | $100.3M | $7.2M | — | — |
| 2020 | $37.0M | $41.8M | $98.0M | $7.8M | — | View 990 |
| 2019 | $27.1M | $34.9M | $96.3M | $5.9M | — | View 990 |
| 2018 | $24.7M | $37.8M | $99.6M | $3.2M | — | View 990 |
| 2017 | $30.9M | $35.0M | $110.4M | $5.9M | — | View 990 |
| 2016 | $25.6M | $35.5M | $113.4M | $7.4M | — | View 990 |
| 2015 | $138.3M | $39.1M | $130.6M | $10.9M | — | View 990 |
| 2014 | $24.0M | $21.2M | $24.5M | $4.1M | — | View 990 |
| 2013 | $19.7M | $19.8M | $20.1M | $2.6M | — | View 990 |
| 2012 | $19.8M | $15.8M | $20.3M | $2.8M | — | View 990 |
Year-by-Year Financial Summary
- 2024: Revenue of $126.5M, expenses of $98.8M, and assets of $127.9M (revenue +127.6% year-over-year).
- 2023: Revenue of $55.6M, expenses of $84.2M, and assets of $94.4M (revenue +39.6% year-over-year).
- 2022: Revenue of $39.8M, expenses of $44.9M, and assets of $98.3M (revenue +13.3% year-over-year).
- 2021: Revenue of $35.1M, expenses of $38.4M, and assets of $100.3M (revenue -5.2% year-over-year).
- 2020: Revenue of $37.0M, expenses of $41.8M, and assets of $98.0M (revenue +36.8% year-over-year).
- 2019: Revenue of $27.1M, expenses of $34.9M, and assets of $96.3M (revenue +9.7% year-over-year).
- 2018: Revenue of $24.7M, expenses of $37.8M, and assets of $99.6M (revenue -20.1% year-over-year).
- 2017: Revenue of $30.9M, expenses of $35.0M, and assets of $110.4M (revenue +20.4% year-over-year).
- 2016: Revenue of $25.6M, expenses of $35.5M, and assets of $113.4M (revenue -81.5% year-over-year).
- 2015: Revenue of $138.3M, expenses of $39.1M, and assets of $130.6M (revenue +475.7% year-over-year).
- 2014: Revenue of $24.0M, expenses of $21.2M, and assets of $24.5M (revenue +22.0% year-over-year).
- 2013: Revenue of $19.7M, expenses of $19.8M, and assets of $20.1M (revenue -0.3% year-over-year).
- 2012: Revenue of $19.8M, expenses of $15.8M, and assets of $20.3M.
View Individual Filing Years
Explore detailed financial data from each IRS 990 filing year for Amyotrophic Lateral Sclerosis Assn:
Data Sources and Methodology
This transparency report for Amyotrophic Lateral Sclerosis Assn is generated by NonprofitSpending's AI analysis engine. The data is sourced from publicly available IRS 990 filings accessed through the ProPublica Nonprofit Explorer API and IRS electronic filing records. The Mission Score, spending breakdown, and other analytical insights are produced by artificial intelligence and should be used as one of multiple factors when evaluating a nonprofit organization.
IRS 990 forms are annual information returns that most tax-exempt organizations must file with the IRS. These forms provide detailed financial information including revenue, expenses, assets, liabilities, and compensation of officers. NonprofitSpending processes this data to provide accessible transparency reports for donors, researchers, and the general public.
Disclaimer
AI-generated analysis based on IRS public records. Not financial or legal advice. Verify information directly with the organization.