Charcot Marie Tooth Association
Charcot Marie Tooth Association: Strong Program Spending, but Transparency Gaps Remain
EIN: 222480896 · Glenolden, PA · NTEE: G8XZ · Updated: 2026-04-04
| Metric | Value |
|---|---|
| Total Revenue | $6.1M |
| Total Expenses | $6.3M |
| Program Spending | 80% |
| Net Assets | $9.6M |
| Transparency Score | 85/100 |
Search Intent Cockpit
Charcot Marie Tooth Association Form 990, Revenue, CEO Pay, and IRS Filing Signals
Charcot Marie Tooth Association is surfaced here as a decision-ready nonprofit financial profile, not just a charity listing. The page consolidates IRS Form 990 revenue, expenses, assets, tax-exempt classification, executive compensation, mission score, red flags, and year-by-year filing history so donors, researchers, journalists, and grant teams can answer the common search questions around Charcot Marie Tooth Association in one place.
Form 990 Filing Summary
13 filing years are available, with latest revenue of $5.8M and expenses of $6.3M.
Revenue and Expenses
Charcot Marie Tooth Association reported $5.8M in revenue and $6.3M in expenses, a deficit of $530K.
Executive Compensation
Officer, director, trustee, and key employee pay is reviewed from IRS 990 compensation disclosures when present.
Charity Score and Red Flags
85/100 mission score, 2 red flags, and 3 strengths are shown from structured and AI review.
Is Charcot Marie Tooth Association Legit?
Some Concerns
Assessment based on IRS 990 filings, spending patterns, and AI analysis. Not a guarantee of legitimacy. Full charity check →
IRS 990 Data Cockpit
Where the Money Comes From and Where It Goes
Revenue Source Mix
Revenue-source line items are not available on the stored filing yet. Future ingestion now preserves contribution, program-revenue, and investment-income fields when ProPublica provides them.
Expense Deployment
| Program services | $5.0M (80%) |
Across stored filings, Charcot Marie Tooth Association shows contribution history pending. Next enrichment targets: revenue-source fields, IRS BMF classification.
Decision Cockpit
One-Stop Donor, Research, and Peer Context Hub
| Decision Lens | Signal | What to Inspect Next |
|---|---|---|
| Legitimacy | Some Concerns | Good filing record; 2 red flags identified |
| Mission spend | 80% to programs | Excellent |
| Financial durability | Grade B | 13 stored filing years |
| Peer context | Compare with The Garage Community And Youth Center | Pennsylvania and Category G context |
Trust Check
Review legitimacy, deductibility, red flags, and filing consistency.
Open charity check →Peer Benchmark
Compare against real state and category peers.
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All Category G
Local and Sector Spokes
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Glenolden, PA nonprofitsCategory G in Pennsylvania
Health in Pennsylvania
Follow the Money
Jump into spending, compensation, rankings, and filing-year evidence.
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Keep the Investigation Moving
Charcot Marie Tooth Association directs 80% of its spending to programs. This exceeds the industry benchmark of 65%, indicating strong mission focus.
About Charcot Marie Tooth Association
Charcot Marie Tooth Association (EIN: 222480896) is a nonprofit organization based in Glenolden, PA, classified under NTEE code G8XZ. The organization reported total revenue of $6.1M and total assets of $9.5M according to its most recent IRS 990 filing. This transparency report provides an AI-powered analysis of Charcot Marie Tooth Association's financial health, spending patterns, executive compensation, and overall mission effectiveness based on publicly available IRS data.
Organization Overview
Charcot Marie Tooth Association is a mid-size nonprofit that has been operating for 40 years, with 13 years of IRS 990 filings on record (2011–2023). Revenue has grown at a compound annual rate of 11.0%.
Key Financial Metrics (2023)
From the most recent IRS 990 filing on record:
| Total Revenue | $5.8M |
| Total Expenses | $6.3M |
| Surplus / Deficit | $-530,458 |
| Total Assets | $9.6M |
| Net Assets | $9.6M |
| Operating Margin | -9.2% |
| Months of Reserves | 18.2 months |
Financial Health Grade: B
In 2023, Charcot Marie Tooth Association reported a deficit of $530K with expenses exceeding revenue, holds 18.2 months of operating reserves (strong position).
Financial Trends
Over 13 years of filings (2011–2023), Charcot Marie Tooth Association's revenue has grown at a compound annual growth rate (CAGR) of 11.0%.
| Year | Revenue Change | Expense Change | Asset Change |
|---|---|---|---|
| 2023 | -44.6% | -3.9% | -3.0% |
| 2022 | +101.2% | +35.3% | +63.6% |
| 2021 | -1.2% | +24.0% | +6.0% |
| 2020 | +10.1% | -4.0% | +30.8% |
| 2019 | -4.6% | +29.1% | +19.3% |
IRS Tax-Exempt Classification
| IRS Classification Codes | 1000 |
| IRS Ruling Date | 1986 |
Classification data from ProPublica Nonprofit Explorer. Additional BMF data may be available after enrichment.
AI Transparency Report
Mission Effectiveness Score
NonprofitSpending's AI analysis rates Charcot Marie Tooth Association with a Mission Score of 85 out of 100 (Excellent). This score reflects the organization's overall financial transparency, program spending efficiency, and governance indicators derived from IRS 990 public filings.
Spending Breakdown
- admin: 10%
- programs: 80%
- fundraising: 10%
According to IRS 990 filings, Charcot Marie Tooth Association allocates its expenses as follows: admin: 10%, programs: 80%, fundraising: 10%. With 80% directed toward programs, this reflects a strong commitment to its charitable mission.
Key Financial Metrics (2023)
From the most recent IRS 990 filing on record:
- The organization reported a deficit of $530K, with expenses exceeding revenue.
Executive Compensation Analysis
Executive compensation details are not explicitly highlighted in the provided data, making a specific assessment difficult without further information on individual salaries.
Executive compensation data is sourced from IRS 990 filings, which require nonprofits to disclose the compensation of officers, directors, trustees, and key employees. NonprofitSpending analyzes this data relative to the organization's total revenue and sector benchmarks to assess whether executive pay is reasonable.
Red Flags
The following concerns were identified during AI analysis of Charcot Marie Tooth Association's IRS 990 filings:
- The provided data does not include specific executive compensation figures, which is a red flag for full transparency.
- While program spending is high, the lack of detailed impact reporting makes it difficult to fully assess the effectiveness of these programs.
Strengths
The following positive indicators were identified for Charcot Marie Tooth Association:
- Consistently high percentage of spending dedicated to programs (80%), indicating a strong focus on their mission.
- Healthy and growing asset base, with assets increasing from $1,835,763 in 2017 to $9,566,018 in 2023.
- Strong revenue generation, with 2022 revenue at $10,398,940, demonstrating robust donor support.
Frequently Asked Questions about Charcot Marie Tooth Association
Is Charcot Marie Tooth Association a legitimate charity?
Charcot Marie Tooth Association (EIN: 222480896) is a registered tax-exempt nonprofit based in Pennsylvania. Our AI analysis gives it a Mission Score of 85/100. It has 13 years of IRS 990 filings on record. Total revenue: $6.1M. 2 red flags identified. 3 strengths noted. Financial health grade: B.
How does Charcot Marie Tooth Association spend its money?
Charcot Marie Tooth Association directs 80% of its spending to programs and services. Fundraising costs 10%. This exceeds the 65% industry benchmark.
Are donations to Charcot Marie Tooth Association tax-deductible?
Charcot Marie Tooth Association is registered as a tax-exempt nonprofit (EIN: 222480896). Donations to most 501(c)(3) organizations are tax-deductible. Consult a tax professional for your specific situation.
What percentage of Charcot Marie Tooth Association's spending goes to programs?
Charcot Marie Tooth Association directs 80% to programs, 10% to fundraising. This exceeds the 65% industry benchmark for efficient nonprofits.
How does Charcot Marie Tooth Association compare to similar nonprofits?
With a transparency score of 85/100 (Excellent), Charcot Marie Tooth Association is above average for NTEE category G8XZ nonprofits. The score reflects financial transparency, program spending efficiency, and governance quality based on IRS 990 data.
Where is Charcot Marie Tooth Association located?
Charcot Marie Tooth Association is headquartered in Glenolden, Pennsylvania and files with the IRS under EIN 222480896. It is classified under NTEE code G8XZ.
How many years of IRS 990 filings does Charcot Marie Tooth Association have?
Charcot Marie Tooth Association has 13 years of IRS 990 filings on record at NonprofitSpending. This extensive filing history provides a strong basis for evaluating long-term financial trends. The most recent filing shows $6.1M in total revenue.
What does Charcot Marie Tooth Association do?
Charcot Marie Tooth Association is a nonprofit organization in the Diseases, Disorders & Medical Disciplines sector, located in Glenolden, Pennsylvania. It is classified under NTEE code G8XZ.
How much revenue does Charcot Marie Tooth Association have?
Charcot Marie Tooth Association reported total revenue of $6,074,621. Based on 13 IRS 990 filings on record.
What are Charcot Marie Tooth Association's total assets?
Charcot Marie Tooth Association holds total assets of $9,548,719 as reported in IRS 990 filings.
Where is Charcot Marie Tooth Association located?
Charcot Marie Tooth Association is based in Glenolden, Pennsylvania.
What is Charcot Marie Tooth Association's EIN?
Charcot Marie Tooth Association's Employer Identification Number (EIN) is 222480896. This is the unique tax ID assigned by the IRS for tax-exempt organizations.
What type of nonprofit is Charcot Marie Tooth Association?
Charcot Marie Tooth Association is classified under NTEE code G8XZ (Diseases, Disorders & Medical Disciplines).
Is Charcot Marie Tooth Association a registered 501(c)(3)?
Yes, Charcot Marie Tooth Association is recognized as a tax-exempt organization by the IRS. EIN: 222480896.
Does Charcot Marie Tooth Association file IRS Form 990?
Yes, Charcot Marie Tooth Association has 13 IRS Form 990 filings on record. The most recent covers tax period 202312.
What was Charcot Marie Tooth Association's revenue in 2023?
In the 202312 filing period, Charcot Marie Tooth Association reported total revenue of $5,761,508, total expenses of $6,291,966, and net assets of $9,566,018.
Is Charcot Marie Tooth Association's revenue growing or declining?
Charcot Marie Tooth Association's revenue is declining. Revenue went from $10,398,940 (202212) to $5,761,508 (202312), a -44.6% change. Based on 13 filings on record.
What is Charcot Marie Tooth Association's most recent 990 filing?
The most recent IRS Form 990 filing for Charcot Marie Tooth Association covers tax period 202312. It shows revenue of $5,761,508, expenses of $6,291,966, total assets of $9,566,018, and liabilities of N/A.
How much does Charcot Marie Tooth Association spend on programs vs administration?
Based on IRS 990 analysis, Charcot Marie Tooth Association allocates approximately 80% of expenses to program services, 10% to administrative costs, and 10% to fundraising. This indicates strong program focus.
Is Charcot Marie Tooth Association a trustworthy charity?
Based on AI analysis of IRS 990 data, Charcot Marie Tooth Association appears trustworthy. Mission Score: 85/100 (Excellent). 2 red flags identified. 3 strengths noted.
What are the red flags for Charcot Marie Tooth Association?
The following concerns were identified: The provided data does not include specific executive compensation figures, which is a red flag for full transparency.. While program spending is high, the lack of detailed impact reporting makes it difficult to fully assess the effectiveness of these programs.. These flags are based on automated analysis of IRS 990 public filings and should be verified independently.
What are Charcot Marie Tooth Association's strengths?
Positive indicators for Charcot Marie Tooth Association include: Consistently high percentage of spending dedicated to programs (80%), indicating a strong focus on their mission.. Healthy and growing asset base, with assets increasing from $1,835,763 in 2017 to $9,566,018 in 2023.. Strong revenue generation, with 2022 revenue at $10,398,940, demonstrating robust donor support.. These findings are derived from AI analysis of the organization's financial filings.
How does Charcot Marie Tooth Association compensate executives?
Executive compensation details are not explicitly highlighted in the provided data, making a specific assessment difficult without further information on individual salaries. Executive compensation data is sourced from IRS 990 filings, which require disclosure of officer, director, and key employee pay.
How does the organization ensure that its significant program spending directly translates into measurable improvements for individuals with Charcot Marie Tooth disease?
While the financial data shows a strong commitment to program spending, the provided information lacks specific metrics or qualitative reports detailing the direct impact and outcomes of these programs on beneficiaries. Further reporting on program effectiveness would be beneficial.
Given the substantial increase in assets from $1.8M in 2017 to $9.5M in 2023, what is the organization's strategy for utilizing these accumulated assets to further its mission?
The significant growth in assets suggests strong financial management and fundraising. Understanding the strategic plan for deploying these assets, beyond operational expenses, to expand research, patient support, or advocacy initiatives would provide valuable insight into long-term impact.
Filing History
IRS 990 filing history for Charcot Marie Tooth Association showing financial trends over 13 years of public records:
Over 13 years of IRS 990 filings (2011–2023), Charcot Marie Tooth Association's revenue has grown by 248.8%, moving from $1.7M to $5.8M. Total assets increased by 1005.2% over the same period, from $866K to $9.6M. Total functional expenses rose by 419.1%, from $1.2M to $6.3M. In its most recent filing year (2023), Charcot Marie Tooth Association reported a deficit of $530K, with expenses exceeding revenue.
| Year | Revenue | Expenses | Assets | Liabilities | Officer Comp. % | |
|---|---|---|---|---|---|---|
| 2023 | $5.8M | $6.3M | $9.6M | $0 | — | View 990 |
| 2022 | $10.4M | $6.5M | $9.9M | $0 | — | View 990 |
| 2021 | $5.2M | $4.8M | $6.0M | $0 | — | View 990 |
| 2020 | $5.2M | $3.9M | $5.7M | $0 | — | — |
| 2019 | $4.8M | $4.1M | $4.3M | $0 | — | View 990 |
| 2018 | $5.0M | $3.2M | $3.6M | $0 | — | View 990 |
| 2017 | $3.1M | $2.5M | $1.8M | $74K | — | View 990 |
| 2016 | $3.2M | $3.4M | $1.2M | $392K | — | View 990 |
| 2015 | $3.7M | $4.0M | $1.5M | $516K | — | View 990 |
| 2014 | $3.2M | $2.8M | $1.7M | $290K | — | View 990 |
| 2013 | $1.9M | $2.0M | $1.1M | $11K | — | View 990 |
| 2012 | $1.7M | $1.4M | $1.1M | $13K | — | View 990 |
| 2011 | $1.7M | $1.2M | $866K | $25K | — | View 990 |
Year-by-Year Financial Summary
- 2023: Revenue of $5.8M, expenses of $6.3M, and assets of $9.6M (revenue -44.6% year-over-year).
- 2022: Revenue of $10.4M, expenses of $6.5M, and assets of $9.9M (revenue +101.2% year-over-year).
- 2021: Revenue of $5.2M, expenses of $4.8M, and assets of $6.0M (revenue -1.2% year-over-year).
- 2020: Revenue of $5.2M, expenses of $3.9M, and assets of $5.7M (revenue +10.1% year-over-year).
- 2019: Revenue of $4.8M, expenses of $4.1M, and assets of $4.3M (revenue -4.6% year-over-year).
- 2018: Revenue of $5.0M, expenses of $3.2M, and assets of $3.6M (revenue +58.8% year-over-year).
- 2017: Revenue of $3.1M, expenses of $2.5M, and assets of $1.8M (revenue -1.2% year-over-year).
- 2016: Revenue of $3.2M, expenses of $3.4M, and assets of $1.2M (revenue -13.0% year-over-year).
- 2015: Revenue of $3.7M, expenses of $4.0M, and assets of $1.5M (revenue +15.8% year-over-year).
- 2014: Revenue of $3.2M, expenses of $2.8M, and assets of $1.7M (revenue +62.0% year-over-year).
- 2013: Revenue of $1.9M, expenses of $2.0M, and assets of $1.1M (revenue +14.6% year-over-year).
- 2012: Revenue of $1.7M, expenses of $1.4M, and assets of $1.1M (revenue +2.9% year-over-year).
- 2011: Revenue of $1.7M, expenses of $1.2M, and assets of $866K.
View Individual Filing Years
Explore detailed financial data from each IRS 990 filing year for Charcot Marie Tooth Association:
Data Sources and Methodology
This transparency report for Charcot Marie Tooth Association is generated by NonprofitSpending's AI analysis engine. The data is sourced from publicly available IRS 990 filings accessed through the ProPublica Nonprofit Explorer API and IRS electronic filing records. The Mission Score, spending breakdown, and other analytical insights are produced by artificial intelligence and should be used as one of multiple factors when evaluating a nonprofit organization.
IRS 990 forms are annual information returns that most tax-exempt organizations must file with the IRS. These forms provide detailed financial information including revenue, expenses, assets, liabilities, and compensation of officers. NonprofitSpending processes this data to provide accessible transparency reports for donors, researchers, and the general public.
Disclaimer
AI-generated analysis based on IRS public records. Not financial or legal advice. Verify information directly with the organization.